PVC nightmare
Hi, it’s me again. I’m sorry, but I’m just struggling really bad and this board is helping me. The PVCs have gotten worse and I had my worst day ever with him yesterday to the point I was having one every five seconds to 10 seconds and I just don’t understand. I took the potassium out of my morning meds this morning and started a multivitamin instead, and I kept the magnesium and for most of the day I thought they were gone minus a few here and there. But every night when it comes about 7 o’clock, they start coming and they keep coming and they keep coming and I just sometimes they feel different and they feel like my heart’s weaker or something. I don’t know how to explain it. I don’t get lightheaded. I don’t get dizzy. I don’t pass out and I know they’re benign because I’ve had every test you could possibly have with every specialist but I don’t wanna live this way. I can’t. It’s too hard. I’m scared to go do anything because I don’t want to ruin everybody else’s time by having a heart attack or going into a fib or something I’m 43. I don’t want to live the rest of my life like this.
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@carbcounter it’s so hard. Hearing “you’re fine. Learn to live with it”. It’s debilitating for me. And my panic disorder makes it a million times worse.
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2 Reactions@chickenfarmer Hi...just wanted to chime in here in regard to TSH. Mine was 15.56 if you can believe that! My PAC's were out of control and I was SO sick. Once we got the TSH back in normal range, I've been much more successful using Diltiazem to control the PACs
@judy3276 thanks for sharing your experience. I haven’t experienced any arrhythmias with that high TSH. My highest value was around 9 in 2022. need to study my traces from that time to see status of arrhythmias. I have read some on the relationship between TSH and arrhythmias there is general consensus that hyperthyroidism is correlated with more arrhythmias however there’s not so much agreement on how hypothyroidism affects arrhythmias. My current TSH level is approximately 4 which seems to be a sweet spot. I’m still searching for an endocrinologist who is versed in thyroid effect on ectopic to optimize as hypo is not fun either. I’m not using any medication but PVC/PAC have disappeared whereas in 2024 about 25% of beats were non sinus. Funny in that I’ve tried Kardia, Galaxy and I Watch. All conclude that PAC/PVC traces are AFIB even though my EP and QALY dispute this. Guess the device guys need to improve their algorithms. This all folds in to my status as post ablation and not on Elliquis. I monitor rhythm frequently to insure I take Elliquis if AF returns.
@drdianeschneider When I started having PACs, I didn't know what they were, but I soon discovered that 1000mg L-Carnitine Tartrate BID got rid of them.
There is a long-term concern with TMAO when taking Carnitine regularly, so I am interested in finding a way to check my TMAO level.