1. < Neuropathy
Profile picture for solobeee1

Has anyone tried IVIG infusions for neuropathy?

Posted by solobeee1 @solobeee1, Oct 7, 2025

IVIG Infusions for neuropathy?

Interested in more discussions like this? Go to the Neuropathy Support Group.

Profile picture for solobeee1
solobeee1 | @solobeee1 | Oct 11, 2025
In reply to @solobeee1 "@artemis1886 I just researched a bit & found that there are 10 different brands of IVIG...." + (show)
Profile picture for solobeee1 @solobeee1

@artemis1886
I just researched a bit & found that there are 10 different brands of IVIG. I’ll try & find out if one is better for neuropathy.
B.

Jump to this post

@solobeee1
I just researched a bit & found that there are 10 different brands of IVIG. I’ll try & find out if one is better for neuropathy.
B.

REPLY
Profile picture for artemis1886
artemis1886 | @artemis1886 | Oct 11, 2025
In reply to @solobeee1 "@artemis1886 I just researched a bit & found that there are 10 different brands of IVIG...." + (show)
Profile picture for solobeee1 @solobeee1

@artemis1886
I just researched a bit & found that there are 10 different brands of IVIG. I’ll try & find out if one is better for neuropathy.
B.

Jump to this post

@solobeee1 Octagam did not work for me. I was on IVIG from age 10-18. There is more than 10 brands. The subcutaneous IVIG does not work as well on CAN according to the electrophsiologist.

REPLY
Profile picture for suetex
suetex | @suetex | Oct 12, 2025
In reply to @solobeee1 "@artemis1886 I just researched a bit & found that there are 10 different brands of IVIG...." + (show)
Profile picture for solobeee1 @solobeee1

@artemis1886
I just researched a bit & found that there are 10 different brands of IVIG. I’ll try & find out if one is better for neuropathy.
B.

Jump to this post

@solobeee1 We might be looking at economics here. I think Octogam is the cheapest and the choice may be made by the insurance and the infusion center. I would be interested in what you find out.

REPLY
Profile picture for princeton135
princeton135 | @princeton135 | Jan 26 5:38pm
In reply to @laurenthewise1 "Yes I did. This was in probably 2016. I was seeing a specialist at The University..." + (show)
Profile picture for laurenthewise1 @laurenthewise1

Yes I did. This was in probably 2016. I was seeing a specialist at The University of Chicago who recommended it and thought it would cure it or at the very least stop the progression. I did them for a year without any improvement. At the time they believed that my SFN was due to an autoimmune disease but they now think it’s idiopathic. Maybe if it had been from autoimmune disease it would have helped.

Jump to this post

@laurenthewise1
If you don’t mind me asking, how old are you and has it progressed into large fiber?

REPLY
1 reply
Profile picture for solobeee1
solobeee1 | @solobeee1 | Jan 26 7:08pm

I’m 82 & it has not progressed into Large Fibre. I ride my EBIKE 3-4 times a week ~ keep the circulation going & continue to look for supplements that are not snake oil.

REPLY
Profile picture for laurenthewise1
laurenthewise1 | @laurenthewise1 | Jan 26 9:32pm
In reply to @princeton135 "@laurenthewise1 If you don’t mind me asking, how old are you and has it progressed into..." + (show)
Profile picture for princeton135 @princeton135

@laurenthewise1
If you don’t mind me asking, how old are you and has it progressed into large fiber?

Jump to this post

@princeton135
No I don’t have large fiber thankfully! I just turned 60 a few weeks ago. I think it was about 10 years ago that I had the infusions.

REPLY
Profile picture for lreed333
lreed333 | @lreed333 | May 13 3:59pm

I have been on IVIG for one year. It definitely helps me but there are many types of IVIG and many causes of neuropathy.

REPLY
Profile picture for suetex
suetex | @suetex | May 14 7:09pm

Intravenous Gammagloblin taken from multiple healthy doners and usely infused at set times depending on your condition.

REPLY
Please sign in or register to post a reply.