Does anyone else have MGUS?

@carolduggan, welcome. Using search terms MGUS and hives, I found these comments from other members:
https://connect.mayoclinic.org/search/comments/
How do you manage the hives when you experience an outbreak?

Yes I have MGUS; was diagnosed 23 years ago in 2002. It is truly a waiting game.
While my M spike and FLC lambda have gone up, they are reasonably stable. My previous Mayo hematologist (who retired) wanted bloods drawn every 3 months. My current hematologist is more relaxed about all of this and I have blood tests every six months now. After 23 years I do not get nervous anymore waiting for results,
I guess time will tell. I do not have symptoms that I know of.

Hi @mjlandin
I was diagnosed with MGUS last July via standard tests related to Neuropathy.
M-Spike on serum electrophoresis of 0.2 and IgG kappa but with normal hemoglobin and normal serum free light chain ratio. I will continue to have blood tests every 6 months per my Hematologist. About 5% of adults over 65 have MGUS per Mayo Clinic study and only about 1% per year will progress to MM. I don’t worry about this condition at the moment since there is nothing that can be done to treat it or reduce the odds to migrate to SMM or MM.

Hi,
I am 50 years old, I recently did a blood test that showed I had Band 1 Monoclonal IgG with lambda light chains 2.3g/L. My GP believes it to be MGUS. I have my first haematology appointment on Thursday. I also have prediabetes, kidney stones and an inflammatory skin condition, hidradenitis supporativa of which I have been on Humira the past 2 years. What should I ask the Haematologist?

Hi @mjlandin
I was diagnosed with MGUS last July via standard tests related to Neuropathy.
M-Spike on serum electrophoresis of 0.2 and IgG kappa but with normal hemoglobin and normal serum free light chain ratio. I will continue to have blood tests every 6 months per my Hematologist. About 5% of adults over 65 have MGUS per Mayo Clinic study and only about 1% per year will progress to MM. I don’t worry about this condition at the moment since there is nothing that can be done to treat it or reduce the odds to migrate to SMM or MM.

@ea1 hey there! I’ve just been diagnosed with the same number as you only I’m igg lambda. How are you doing? I’m envious of your lack of worry, how do you do it?!

@theadosi
Doing fine. Just live your life and don’t attribute any pain to MGUS progression. I continue to get blood test once a year and seeing the Hematologist. I also avoid reading and following MGUS Facebook or other groups where people complain about ills related to MGUS.

Got to wake up every morning and be happy and thankful !