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@ea1 hey there! I’ve just been diagnosed with the same number as you only I’m igg lambda. How are you doing? I’m envious of your lack of worry, how do you do it?!
Replies to "@ea1 hey there! I’ve just been diagnosed with the same number as you only I’m igg..."
Hi Thea (and everyone), I have IGG Lambda and was diagnosed 2 1/2 years ago. It was a random finding that I questioned regarding IGG being elevated, which the doctor said it was nothing to worry about! My IGM and IGA were in the normal range. However, I questioned why it was high and she referred me to a Hematologist/Oncologist for further investigation. All my numbers have been stable so far. My IGG has gone up a little and my FLC ratio is low. My M-Spike was 1.1 in August 2025, down from 1.3 in January 2025.
I go in tomorrow for my 6 month panel of tests, like all of us, but I have not had a BMB as of yet, and since my numbers have been basically ok, I have been opting out of having it. Also, my new Hematologist/Oncologist Professor from John Hopkins Hospital has not been pressuring me to get this done right now. There isn't any treatment for MGUS anyway, which we know, until you progress. I am sure I have had MGUS for many, many years and did not know it. If you don't mind me asking, have you ever had a BMB done? What is your FLC ratio and your M-Spike?
It is great to be able to post on this group and get feedback! You can never have enough knowledge to help make the right decisions when it comes to your health and many other things in life that we experience along our journey!
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@theadosi
Doing fine. Just live your life and don’t attribute any pain to MGUS progression. I continue to get blood test once a year and seeing the Hematologist. I also avoid reading and following MGUS Facebook or other groups where people complain about ills related to MGUS.
Got to wake up every morning and be happy and thankful !