PVC nightmare

Posted by kpryor1982 @kpryor1982, Jan 19 11:43pm

Hi, it’s me again. I’m sorry, but I’m just struggling really bad and this board is helping me. The PVCs have gotten worse and I had my worst day ever with him yesterday to the point I was having one every five seconds to 10 seconds and I just don’t understand. I took the potassium out of my morning meds this morning and started a multivitamin instead, and I kept the magnesium and for most of the day I thought they were gone minus a few here and there. But every night when it comes about 7 o’clock, they start coming and they keep coming and they keep coming and I just sometimes they feel different and they feel like my heart’s weaker or something. I don’t know how to explain it. I don’t get lightheaded. I don’t get dizzy. I don’t pass out and I know they’re benign because I’ve had every test you could possibly have with every specialist but I don’t wanna live this way. I can’t. It’s too hard. I’m scared to go do anything because I don’t want to ruin everybody else’s time by having a heart attack or going into a fib or something I’m 43. I don’t want to live the rest of my life like this.

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

Profile picture for chickenfarmer @chickenfarmer

kpryor, I didn't see anywhere in your posts that you had been tested for sleep apnea. Since I sense that you are overweight this is particularly important to chase down as obesity is correlated with sleep apnea. The relationship between sleep apnea and AFIB is well documented. your EP should know this.

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@chickenfarmer I actually w did a sleep study. No I don’t have sleep apnea.

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Profile picture for chickenfarmer @chickenfarmer

kpryor, I didn't see anywhere in your posts that you had been tested for sleep apnea. Since I sense that you are overweight this is particularly important to chase down as obesity is correlated with sleep apnea. The relationship between sleep apnea and AFIB is well documented. your EP should know this.

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@chickenfarmer also why would you sense that I’m overweight? How can you sense that from messages? I’m not perfect by any means but I’m not obese. Also, I have plenty of specialist and doctors following all of my medication and my thyroid and all of that so sometimes you give a bunch of information that is not needed because you’re not my doctor.

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Hello, I'd like to remind Connect members of the Community Guidelines. In particular, number 4:

4. Respect all members.
- Use polite, respectful language
- Show respect for members even when you do not share their views

In written communication, like online communities, context can sometimes be difficult to express or interpret. We must be careful not to make assumptions and then in turn make medical suggestions based on those assumptions. Mutual respect is a must. Connect is a place for members to share experiences and questions to help make more informed decisions and conversations with their care teams.
https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/

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Profile picture for kpryor1982 @kpryor1982

@chickenfarmer also why would you sense that I’m overweight? How can you sense that from messages? I’m not perfect by any means but I’m not obese. Also, I have plenty of specialist and doctors following all of my medication and my thyroid and all of that so sometimes you give a bunch of information that is not needed because you’re not my doctor.

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@kpryor1982 SOrry if I erred. MAybe it was another poster who mentioned that they were using GLP1. If I'm wrong no harm done and if I'm correct another possibility for you to check. Just trying to help; your intial note seemed pretty desperate. ANyway if your weight is under control one less possible cause to worry about

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Hello, kpryor, This is my story of how we dealt w/ my sudden appearance of constant PAC's, trigeminy and bigeminy, which were driving me nuts (yes, I believe that's the technical term 🙂 ). I was already taking 180 mg of extended release diltiazem daily, but it wasn't stopping the ectopics. My cardio who is not an EP said, "Increase diltiazem to 240 ER, and add 25 mg of metoprolol twice daily." It took a few days, but it stopped all of the ectopics completely. Not everyone is a candidate to take BOTH of these meds together, but I have no structural heart issues or other contraindications. (I had been on metopolol by itself for the last few years, but only 12.5 mg twice daily, and mainly because I take flecainide PIP to stop AF episodes.) I don't seem to have side effects from any of these meds. This regimen might prove to work for you--I hope so. Most of us feel that ectopics are far worse than having AF episodes.

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Profile picture for chickenfarmer @chickenfarmer

@kpryor1982 SOrry if I erred. MAybe it was another poster who mentioned that they were using GLP1. If I'm wrong no harm done and if I'm correct another possibility for you to check. Just trying to help; your intial note seemed pretty desperate. ANyway if your weight is under control one less possible cause to worry about

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@chickenfarmer I appreciate your apology. I am on a GLP one, but that doesn’t mean that I’m obese people are on them for many different reasons. One of my reasons is inflammation and borderline diabetic. Also a little bit of weight off couldn’t hurt, but I’m not obese.

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Profile picture for drdianeschneider @drdianeschneider

Hello, kpryor, This is my story of how we dealt w/ my sudden appearance of constant PAC's, trigeminy and bigeminy, which were driving me nuts (yes, I believe that's the technical term 🙂 ). I was already taking 180 mg of extended release diltiazem daily, but it wasn't stopping the ectopics. My cardio who is not an EP said, "Increase diltiazem to 240 ER, and add 25 mg of metoprolol twice daily." It took a few days, but it stopped all of the ectopics completely. Not everyone is a candidate to take BOTH of these meds together, but I have no structural heart issues or other contraindications. (I had been on metopolol by itself for the last few years, but only 12.5 mg twice daily, and mainly because I take flecainide PIP to stop AF episodes.) I don't seem to have side effects from any of these meds. This regimen might prove to work for you--I hope so. Most of us feel that ectopics are far worse than having AF episodes.

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@drdianeschneider I appreciate this. I’m starting to see a pattern and it has to do with. I’m only on 25 mg of metoprolol and I’ve been on that for almost 2 years now twice a day. I do believe I need to go up on that dosage so I’m going to talk to my electric physiologist because it seems to wear off around night time every night about the same time and they start. I do have days where they’re crazy flareups and there’s nothing I can do on those days but just power through. I have a structurally normal heart. I did a cardiac MRI a few years ago on my own accord even though they made me feel silly for doing it. I needed to know my electrophysiologist says that my beats are all still under 1% most of the time like .3% so I feel silly feeling this way, but on the really bad days it’s still really hard because it’s not a normal thing to feel your heart this way

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Profile picture for kpryor1982 @kpryor1982

@chickenfarmer I appreciate your apology. I am on a GLP one, but that doesn’t mean that I’m obese people are on them for many different reasons. One of my reasons is inflammation and borderline diabetic. Also a little bit of weight off couldn’t hurt, but I’m not obese.

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@kpryor1982 I'm overweight and have been trying to lose weight as everything I read says overweight is not good for me. I didn't catch that you had already been tested for sleep apnea and I know that overweight and sleep apnea go together. Since you've discontinued your thyroid med have you seen any improvements in arrythmias?

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Profile picture for chickenfarmer @chickenfarmer

@kpryor1982 I'm overweight and have been trying to lose weight as everything I read says overweight is not good for me. I didn't catch that you had already been tested for sleep apnea and I know that overweight and sleep apnea go together. Since you've discontinued your thyroid med have you seen any improvements in arrythmias?

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@chickenfarmer I’ve been off of it for 8 weeks and no change. If anything worse

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