Cerebellar Stroke - experience/treatment/recovery

Hi @strokesurvivordynamo, (I love your username.)
Thanks for kicking off this topic. Given that cerebellar strokes account for less than 10% of all strokes, this is an important discussion group to form so that survivors can share their road to recovery together. Can you tell us a bit more about your story? What impact has stroke had on you? Did your stroke affect the left or right side? How is rehabilitation going?

I have not had a stroke, but am at high risk with a severely narrowed rt. Cerebral artery.

Has anyone had endovascular correction of cerebral artery?

Hi @nskinner5 I have had 3 surgical repairs of a ruptured cerebral AVM. The last 2 repairs were less invasive by going through my groin. Toni

How were they? Painful? Successful? Do you recommend doing this before aneurism forms?

Hello @nskinner5 and welcome to Mayo Clinic Connect. I understand that you are looking to connect with members who have experience with endovascular correction of cerebral artery. @avmcbellar has responded with her experience.

It sounds like you are considering a proactive procedure to eliminate the risk of aneurism. What options have you talked with your neurologist about so far?

Hi @nskinner5 have you spoken to your vascular surgeon for the risks involved with the surgery and what to expect as an outcome? In my case preventing the aneurism would have yielded a better outcome. My cerebral aneurism involved 5 blood vessels connecting at a junction in the cerebellum. As a result I am dealing with diplopia, imbalance, motion sickness, dizziness, and muscle weakness. All those health issues at once limit my mobility. It is very difficult for me to walk on uneven surfaces like the lawn or graveled driveway. I am a high fall risk so I have to be very cautious. The cerebellum is the part of the brain that gets affected when one drinks so I have issues with coordination. Basically, I walk like a drunk without having had a drink, lol. I am on no medications either because I choose not to be. I see no reason for it. I was told by my neuro vascular surgeon that I no longer have the AVM but I do suffer from its deficits. It is a long and slow process to recovery. Very debilitating. I will be happy to answer your questions to help you come to a decision. Best wishes to you. Toni

Thank you so much for this valuable info. I think my next step is to see a neurosurgeon
About endovascular repar of my rt. Cerebral artery. There is one 2 hours away but none
In our town. I prefer to be proactive. nskinner5

No. I am waiting for an appt. primary care sent referral, and I have called,but no call back yet.