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Supporting Glioblastoma Patient: What can I expect as the caregiver?
Caregivers | Last Active: Jan 28 12:45pm | Replies (31)Comment receiving replies
@justasmalltowngirl ..
Hello I am caregiver to my 34 yr old son that has stage 4 gliobastoma and I would appreciate any and all info for caring, funding or whatever u would be willing to pass along..I pray that your mother is still doing good...thanks
Replies to "@justasmalltowngirl .. Hello I am caregiver to my 34 yr old son that has stage 4..."
@annagayle I found information on Area’s Agency on Aging. This discussion. that was posted a while ago, has lots of info that you will find helpful.
https://connect.mayoclinic.org/comment/1489908/. I borrowed it from @kedim .
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@annagayle
Your son has hit a stage with glioblastoma that can be pretty common. He probably just wants to sleep. You can play some of his favorite music that might stimulate his brain. Do you have nurses aides whom come to help you? While your son is in bed, you want to keep him comfortable. Bed baths, skin care, oral care, anything you can think of that will be comforting. These are skills that the nurses or nurse aides can teach you. And talk to him. Talking to your son is so important! Some researchers and doctors believe that a person can hear until they no longer can
As far as funding, the hospice social worker is the best person to ask. Every state is different so I can’t answer that question. But you can try calling your state’s Agency on Aging and ask for guidance. There is probably an office in your town.
Are other family members able to help you?