AML, age 78, taking Decetabine/ Venetoclax, no transplant

Posted by lindagi @lindagi, Jun 30, 2023

I am a 78 yrs old with AML and opted not to have a bone marrow transplant due to my age. I have been in remission for 16 months thanks to regular cycles of Decetabine (infused, brand name Dacagen) and Venetoclax (orally, brand name Venclexta ). Anyone else on the same regime? Would love to hear your experiences and share mine.

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bettersleep68 | @bettersleep68 | Jan 22 3:32pm

I know this was an older post but I would like to know how you are doing...I too have aml and take vidaza and vencllecta..I am in remission but not molecular remission..looking forward to hearing from you....best wishes. This was for lindgal

Lori, Volunteer Mentor | @loribmt | Jan 23 9:26am

In reply to @bettersleep68 "I know this was an older post but I would like to know how you are..." + (show)

Hi @bettersleep68 It’s really encouraging to see that the V&V treatments are working to bring you to remission! From my understanding, not everyone with AML on V&V achieves a complete molecular remission but the medication can help keep the cancer from progressing. That’s a win!
It looks like this messages was meant for @lindagi so I’m sure she’ll see the notification and get back to you.

How are you tolerating the meds? Are you feeling ok now?

bettersleep68 | @bettersleep68 | Jan 23 1:48pm

In reply to @loribmt "Hi @bettersleep68 It’s really encouraging to see that the V&V treatments are working to bring you..." + (show)

@loribmt thank you for your reply ..it is nice to hear from someone who has time to reply to your text..you are a blessing on this site and have encouraged so many of us with this journey..thank you again ..

Lori, Volunteer Mentor | @loribmt | Jan 24 8:49am

In reply to @bettersleep68 "@loribmt thank you for your reply ..it is nice to hear from someone who has time..." + (show)

@bettersleep68 Aw, thank you so much for such a sweet message this morning! I’m grateful to be in the position to offer encouragement. I know from experience having AML is no walk on the beach but it’s being made much easier for so many patients with the newer treatments that our health care teams can provide! It’s really wonderful that you’re responding so well to your treatment! 🥰
Thank you for making my day!

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