1. < Polymyalgia Rheumatica (PMR)
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Symptoms after you stop prednisone

Posted by ejhagerman @ejhagerman, Jun 16, 2024

I was diagnosed with PMR in April, 2023 and prescribed 15 mg of prednisone tapering monthly until completely off by May, 2024. Understandably, my previous osteoarthritis symptoms and pain returned in my knees and lower back. Over the last year, I presume that the prednisone masked that pain. However, when I tapered to 1 mg, my hand joints swelled (which is new), I have a trigger middle finger in my right hand, and I experience some discomfort in my shoulders in the morning. In June, 2024, I had blood work and my Sed Rate and C Reactive Protein results were in the normal range. Has anyone else experienced hand swelling after tapering off prednisone or other new symptoms (not reflected in your lab results)? When are these new symptoms concerning and how did you treat them?

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tweetypie13 | @tweetypie13 | Jan 20 7:45am
In reply to @rona7 "@tweetypie13 I did not go cold turkey. I held it for 3 weeks then 4 and..." + (show)
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@tweetypie13 I did not go cold turkey.
I held it for 3 weeks then 4 and then stoped.
This is very unconventional and not according to the instructions
What made it possible for me I think is a total change of lifestyle.
Anti inflammatory diet and exercise.
I do not think it is for everybody and do not recommend it without good MD follow up

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@rona7 thx for info.
I am currently at every 3 weeks and have been for 3 months .
(It was chged to that when my blood work went down)
It will be 5 months when my next Rehumy appt.
I’m thinking, if no pain he may consider stopping Kevzara.
If I did stop it, it would be almost 1 yr on Kevzara, which I hve read is a good bench mark for completion. 🙃 🤞

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rona7 | @rona7 | Jan 21 11:40am
In reply to @tweetypie13 "@rona7 thx for info. I am currently at every 3 weeks and have been for 3..." + (show)
Profile picture for tweetypie13 @tweetypie13

@rona7 thx for info.
I am currently at every 3 weeks and have been for 3 months .
(It was chged to that when my blood work went down)
It will be 5 months when my next Rehumy appt.
I’m thinking, if no pain he may consider stopping Kevzara.
If I did stop it, it would be almost 1 yr on Kevzara, which I hve read is a good bench mark for completion. 🙃 🤞

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@tweetypie13
That is great, thanks for the information.
Good luck

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stonewheel | @stonewheel | Jan 22 11:11pm
In reply to @elizabethannr "@caroljeand This is what I have found: What type of tests are potentially affected? The Food..." + (show)
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@caroljeand This is what I have found: What type of tests are potentially affected?
The Food and Drug Administration (FDA) has published a warning regarding the possible interference of Biotin supplementation with a few specific laboratory tests. Tests that are typically used for the evaluation of endocrine function, including but not limited to PTH (parathyroid hormone), TSH (thyrotropin), fT4 (free thyroxine), TT3 (total triiodothyronine), and Tg (thyroglobulin); as well as other tests such as troponin, serum folate, vitamin D, and hepatitis A & B antibodies may produce inaccurate results when someone is taking a Biotin supplement. Some of these tests are at risk of producing results that are falsely too high or too low when Biotin is present in the tested sample.

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@elizabethannr yes, I started Kevzara 2 days ago. Bloodwork done today was all over the place. Knowing what is to be of concern is a challenge and of scary at times.

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tweetypie13 | @tweetypie13 | Jan 23 7:48am
In reply to @stonewheel "@elizabethannr yes, I started Kevzara 2 days ago. Bloodwork done today was all over the place...." + (show)
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@elizabethannr yes, I started Kevzara 2 days ago. Bloodwork done today was all over the place. Knowing what is to be of concern is a challenge and of scary at times.

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@stonewheel
Breathe….Kevzara takes awhile to start working……upto 60 days.
Probably too 🔜 to react

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stonewheel | @stonewheel | Jan 23 9:34am
In reply to @tweetypie13 "@stonewheel Breathe….Kevzara takes awhile to start working……upto 60 days. Probably too 🔜 to react" + (show)
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@stonewheel
Breathe….Kevzara takes awhile to start working……upto 60 days.
Probably too 🔜 to react

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@tweetypie13, right. Breathing is good. 🙂
Thanks for the encouragement.

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