← Return to Looking for advice: Could this be MGUS, because of low m-spike?

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@oliviahutson hi Olivia. I just wanted to reach out as I’ve recently been diagnosed with MGUS as a healthy, fit 41 year old. How is your journey going? Do you have more answers?

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Replies to "@oliviahutson hi Olivia. I just wanted to reach out as I’ve recently been diagnosed with MGUS..."

@theadosi hello there. It’s been pretty tough for me to be honest. I was also a very fit CrossFitter and spent 5-6 days a week working out and eating super clean for the last 25 years. Oncologist thought I may have Amyloidosis and was sent to Mayo in AZ. Went through multiple biopsies; bone marrow, stomach, PET-CT scans, bone survey, nerve testing, etc. my immune system is very poor and get sick with sinus infections, UTI’s, etc. extremely tired and weak. Lost a lot of weight and have strange skin issues as well. Oncologist doesn’t know what to do because usually MGUS is more asymptomatic. I go in for my 24 urine collection and all my labs every 6 months. I was sick or feeling sick so started working with a naturopath oncologist and started taking fenbendazole and several other supplements. Recently I had stem cell treatment. Still waiting to see if my labs reflect any changes and so far not any change in energy from the treatment. I have blood in my urine now (which I didn’t before) and protein and various other issues with my urine, so they are sending me to urologist and nephrologist now. It’s very frustrating and I just want to get back to me. Grown to understand docs don’t want to help treat symptoms but just “wait and watch” until it’s time for chemo. I refuse to just live like this hence why I sought a naturopath and stem cells. Pls tell me about yourself and I’d love to chat with you about your journey and answer any questions you may have. God is always good! Olivia