Cerebellar Stroke - experience/treatment/recovery

Posted by strokesurvivordynamo @strokesurvivordynamo, Apr 21, 2017

I suffered a Cerebellar Stroke in Dec 2015 in my 40s and am interested in connecting with other cerebellar stroke survivors to share our experiences, testing/therapy options, struggles on the path to recovery.

Interested in more discussions like this? Go to the Stroke & Cerebrovascular Diseases Support Group.

narciso | @narciso | Jun 13, 2019

In reply to @ian7811 "May I just ask if anyone with a cerebellar stroke has any advice about relieving persisting..." + (show)

I had a Cerebellar Stroke about 3 months ago. I can tell you that if the doctors and therapist say that the Vertigo is due to damage, there really isn’t anything you can do about it. My Vertigo lasted about two months, but no one ever told me that the Vertigo was due to a damage.

I only threw up several times in the emergency room and then a few days due to the tubes in my mouth. Once they took the tubes off, I haven’t thrown up or feel nauseas ever since.

I also lost my balance and for most of the rehab I have been on a walker. It was only last week when I transitioned to a cane.

ian7811 | @ian7811 | Jun 13, 2019

Thank you for your advice, I’ll ask to trial that one next time Im at the Doctors. Best wishes Ian.

ian7811 | @ian7811 | Jun 13, 2019

Dear Narciso, thank you too, the family doctor thought it might be damage but the stroke people never commented. I wish you all the very best in your recovery. It sounds like a big improvement with the change to a cane and I hope you can soon move on from that too. My goodness, there’s great positivity on this site, it’s all very uplifting.

trkuk | @trkuk | Jun 13, 2019

In reply to @ian7811 "Thank you for your advice, I’ll ask to trial that one next time Im at the..." + (show)

Your are welcome, best of luck with your recovery. It does get better.

Brightwings AKA Cute Susie | @brightwings | Jun 13, 2019

In reply to @ian7811 "May I just ask if anyone with a cerebellar stroke has any advice about relieving persisting..." + (show)

@iam7811
I help folks cuz so many people helped me. And it's who I am.
I am 68 years old, I have had 19 surgeries in my life. Diagnosed with multiple sclerosis 35 years ago.
I am sick to death of doctors. I used to be on 16 medicines, 6 of which were sedating...I am off every single one of them.
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When the doctors were in charge, I spent years in bed. Been there, didn't like it, don't wanna do it again. Now I can only speak for myself here.
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I decided to take charge of my life. I got to know enlightened people, people with gifts of healing. I listened. I asked questions. I did reflexology, Accupuncture, chiropractic, kinesiology.
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Ask at your local health food store. Talk to an Herbalist there...and ask for suggestions. Trust your gut...it will tell you if something someone says will help you.
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Someone told me about CBD last summer. I started taking it and realized it helped my multiple sclerosis...I stopped falling down. It took care of my nausea and my tremors.
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I take 25 mg 3 times a day. But don't start out at that...start out with 25 mg and let your body tell you when you need more...there is a group here in Mayo Clinic Connect for CBD. Go there and read your little heart out. You will be glad you did.
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I remember you are in Scotland? I don't know if its legal there, but I will take this wonderful healing plant medicine until the day I die.
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I also was told about a product that is bringing my brain back to life. It is called Ultra Colloidal Gold. Company name, Source Naturals. Cost $9.59
I receive no compensation from the company.
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What it does is wake up unused portions of your brain and repair it.
My MS is so much better. I feel better. My balance is much better...I will take this until I die also.
The third product I use us called Wild Shiaga. Company name, American Dream Nutrition. I receive no compensation. It gives me energy and repairs my immune system. Again, I will take this until I die.
.
BTW, I went camping last weekend and am going camping again this weekend. I expect 50 to 75 of my friends to show up also.
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I took my life back...AND IT TAKES AN ACTION TO FEEL BETTER.
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So what does your gut tell you to do.
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I have a bunch of mottos that keep me going...
I am the Energizer Bunny...I keep going and going and going...
One foot I front of the other gets you a long long way. ..
Take an action to change your life...
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Ian, I hope this helps...and on those really difficult days...my best friend motto...FAKE IT TILL YOU MAKE IT.
I also studied how to give myself endorphins...and how to avoid negative chemical dumps...changed my life...that put me in control of how I felt...
I wish you well, Ian...Bright Wings, who is really flying now!

ian7811 | @ian7811 | Jun 14, 2019

In reply to @brightwings "@iam7811 I help folks cuz so many people helped me. And it's who I am. I..." + (show)

@brightwings

Jump to this post

Thank you you’ve been a great help and I’ll research the meds you mentioned and let you know how I get on. Enjoy your camping breaks.

ian7811 | @ian7811 | Jun 14, 2019

In reply to @brightwings "@iam7811 I help folks cuz so many people helped me. And it's who I am. I..." + (show)

@brightwings

Jump to this post

Yikes, just researched CBD, it’s unlikely to be available here. I’ll check out the others. Thanks.

Brightwings AKA Cute Susie | @brightwings | Jun 14, 2019

iam7811
I included the company name of each product. Look them up and order off the internet if necessary...
The CBD company I order from is Lazarus Naturals. I get 1200 mg CBD in coconut oil. I started rubbing it on my face too, I am looking younger everyday.
In 1992, the American government did a study of CBD and their goal was to prove it doesn't work, mind you...
Now the results were...our brains actually have receptors already in place to receive it and take it in.
Cbd is actually made of hemp which is the male plant of marijuana. BUT it has no THC or extremely little. (Only in its DNA)
Hemp has gotten a very bad rap and it DOES not get you high.
Now it sounds like you have been reading, but have you actually gone to the health food store or called them?
Remember, it takes an action to feel better.
I wish you well.
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I will be out of pocket this weekend. No internet signal in the woods where I will be going. I may be back on Sunday, cuz I am also moving in this week.
Hey, if anyone has any extra energy to spare, send it my way for this moving job...I am tired from looking at the the stuff I have to do to move to a decent house...next week.
Smiling at everyone
Bright Wings

Brightwings AKA Cute Susie | @brightwings | Jun 14, 2019

In reply to @ian7811 "Yikes, just researched CBD, it’s unlikely to be available here. I’ll check out the others. Thanks." + (show)

iam7811
I just googled CBD in Scotland...
I found a site titled, "CBD in Scotland, All you need to know"
It is legal in Scotland and you can buy it in the grocery store in oil form.
I am excited for you, cuz I know what it does...it gave me my life back. Smiling at you, Bright Wings
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Its not cheap, I wonder what it costs there. Do your homework...call the grocery, a larger one may have more products for you....