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New approach to Treating Drug-Resistant Epilepsy

Posted by Chris Gautier, Volunteer Mentor @santosha, Apr 24, 2025

Hi, good evening to all!
Just wanted to share with you this article about a new study by researchers at Mayo Clinic that brings new hope for those with refractory epilepsy.
https://newsnetwork.mayoclinic.org/discussion/new-study-in-brain-communications-finds-personalized-deep-brain-stimulation-shows-promise-for-drug-resistant-epilepsy/
https://www.cureepilepsy.org/news/mayo-clinic-study-highlights-a-new-approach-to-treating-drug-resistant-epilepsy/
Chris (@santosha)

Interested in more discussions like this? Go to the Epilepsy & Seizures Support Group.

Profile picture for laura
laura | @laura1961 | 3 days ago
In reply to @santosha "@laura1961 Hi Laura I completely understand that feeling of wanting to give up on doctors. But..." + (show)
Profile picture for Chris Gautier, Volunteer Mentor @santosha

@laura1961
Hi Laura
I completely understand that feeling of wanting to give up on doctors. But as I shared in my post, I'm so glad I kept searching until I found the right doctor to truly care for me. It made all the difference.
Several members of our group have been treated at Mayo Clinic and might be able to share their experiences with you: @dannoyes, @keeg1010, @royanthony, @tchandos, @absentsenior, and @patrassi. Feel free to reach out to them if you'd like to hear their perspectives.
Since you're in Australia, it would be wonderful to find a good epileptologist closer to home. Mayo Clinic might also be able to refer you to a specialist in Australia.
Please, keep persisting!
Chris

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@santosha Thank you for those links I have seen the 1st member but will take a further look at the others too.

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laura | @laura1961 | 3 days ago
In reply to @keeg1010 "@laura1961 I completely agree with Chris. It can be extremely frustrating and overwhelming when you feel..." + (show)
Profile picture for keeg1010 @keeg1010

@laura1961
I completely agree with Chris. It can be extremely frustrating and overwhelming when you feel like the doctors aren't helping. My advice is to never give up. Keep fighting until you find the doctor who understands and is knowledgeable about what you're going through and knows how to help. We were very lucky to be able to get in with Mayo Clinic. They have been wonderful and are very thorough. My son also has the diagnosis of Mesial Temporal Sclerosis and didn't start having seizures until adulthood. We have been through so many doctors, I've lost count. However, once you find the one, your life will change and your stress will decrease. I'm glad you found this group. Everyone here is very helpful, encouraging, and dedicated. You have friends here that are on your side. I wish you luck and as always, feel free to reach out if you have questions.
Take care,
Kerry

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@keeg1010 Thank you so much for the encouragement I really appreciate you and other members understanding where I am coming from regarding the TBI

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keeg1010 | @keeg1010 | 3 days ago

@laura1961
You are very welcome. You will find that you have a family here so always know that you're not alone. We may not have all the answers but we'll always help any way we can.
Kerry

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lynnelw | @lynnelw | 3 days ago

My great respect for Mayo Clinic. Most especially for its Neurology Department. I thank the Lord for all their graciousness and kindness to not just me, but more people who have been, are and can be blessed with their exceptional care!

I wish you all better... Just like I wish for myself.

Thank you Mayo Clinic for continuing your hard work and gaining knowledge to help those of us with this incomparable (to other) disease(s).

Sincerely,

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nighatshaheen | @nighatshaheen | 1 day ago

Can drug resistant epilepsy be treated...or is there any role of stem cell transplant in epilepsy??

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nighatshaheen | @nighatshaheen | 1 day ago
In reply to @dannoyes "Thank you so much for sharing because I am reaching that point where they've tried six..." + (show)
Profile picture for Dan Noyes @dannoyes

Thank you so much for sharing because I am reaching that point where they've tried six different AE drugs with little success. I will share this with my Mayo team to get their feedback.

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@dannoyes, yes, it becomes difficult when drugs do not work. Thanks for sharing. I wanted to know that, is this treatment sucessfully implemented and approved?

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Profile picture for Chris Gautier, Volunteer Mentor
Mentor
Chris Gautier, Volunteer Mentor | @santosha | 1 day ago
In reply to @dannoyes "Thank you so much for sharing because I am reaching that point where they've tried six..." + (show)
Profile picture for Dan Noyes @dannoyes

Thank you so much for sharing because I am reaching that point where they've tried six different AE drugs with little success. I will share this with my Mayo team to get their feedback.

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@dannoyes
Hi Dan,
Looking back at our discussion about this new approach, I've been wondering if you had a chance to bring it up with your Mayo doctor. I'd love to hear what he or she thought!
Chris

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