Recently diagnosed with Gastroparesis

Posted by lusi0610 @lusi0610, Jul 6, 2024

Hello I’ve recently been diagnosed with Gastroparesis and have a question please. I read about a lot of you with g-tubes and implants. Can I ask how long did it take you to get to that point? I’m very scared to think this happens to most at some point.

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Profile picture for margaretob @margaretob

@celia16 I had insulin dependency for 31 years take one 25 units day and 30 nights. GOT NEUROPATHY and crippled both knees got GASTROPARESES in JUNE FOR MY 81st Birthday...am working on it with liquids and a banana/soup diet...so far so good...GLAD TO HEAR FROM SOMEBODY THANKS....Margaret O

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@margaretob , okay so it seems with only taking long acting, you are type 2. Not sure if your A1c is in good range, but if not you might ask about the new meds for type 2. From what I’v read, they offer a lot of benefits. My good friend who was type 2 now has normal insulin levels since taking one of the new meds. She’s now not in the diabetes range. And, she feels great. I might discuss it with my doctor.

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Profile picture for teeposey928 @teeposey928

Yes, in 2020 with severe Gastroparesis. I had many other digestive disorders prior, so medication was not an option as most of it already stopped working for me, and the disease was already severe so my options were all surgical. I have only gotten the gastric stimulator so far but I feel like I will bee needing a feeding tube in the next year or so. This disease really effected my life and is very hard to manage. I can't eat and function or go out in public, so I have to plan my meals around working, errands, etc. I don't have a social life anymore because I'm exhausted from the day to day basics so I rest on days off. And diet doesn't matter for flares in my case. The stimulator helped me stop throwing up, but I still get the debilitating nausea about 50% of the time. My main problem with the stimulator is only having one person in my area that can program it, so I can't see any other GI specialists.

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@teeposey928 was your stimulator placed at Mayo?

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Profile picture for waynecarpenter @waynecarpenter

@teeposey928 was your stimulator placed at Mayo?

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@waynecarpenter no, I had it do w in my hometown Green Bay, through Aurora. My surgeon published an article on it, so I was comfortable with his knowledge on the subject and him doing the surgery.

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Profile picture for teeposey928 @teeposey928

@waynecarpenter no, I had it do w in my hometown Green Bay, through Aurora. My surgeon published an article on it, so I was comfortable with his knowledge on the subject and him doing the surgery.

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@teeposey928 thank you!

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In reply to @waynecarpenter "@teeposey928 thank you!" + (show)
Profile picture for waynecarpenter @waynecarpenter

@waynecarpenter, did you have a stimulator placed at Mayo Clinic?

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This is in response to Hollie and pain under her right ribs. I had that kind of pain for several months and didn't know what was going on. Have you had a CT done on your liver? I had a whole slew of different types of tests, all coming back normal. Finally, my GI Dr. did an Ct on my liver/right quadrant area under my chest. I was found to have hepatic steatosis or fatty liver disease. Mine is mild, so I don't need medication at this stage. I was eating too much steak, meatloaf, ground beef, pork chops-fatty meats. I have cut back on that and eating more chicken, turkey, veggies and limiting my number of red meats. After I would eat steak or red fatty meat, I would have pain in my liver area. Now I know what I have and I am overweight and ordered by the Dr. to lose weight and eat more of a Mediterranean diet and to exercise 150 minutes a week. If I don't change the way I eat and don't exercise, it could get worse over a long period of time and lead to fibrosis of the liver. My Dr. said most people don't have symptoms and they find out when they are older that they have fibrosis of the liver and it starts affecting other organs and its worst stage. I am so thankful I had symptoms and was warned I have this condition.

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RE: gastroparesis: I'm 75, type2 diabetic, but maintain good A1C (under 6.5). For all of you who are dealing with gastroparesis, I would like to say that you MUST stay active. Sitting is deadly; be sure you're up & about every hour or so and get some OUTSIDE time, brisk walking is absolutely required to keep your body operating. This keeps your vagus nerve awake, which stimulates everything else, including the lymph system. Having many friends with similar issues, I KNOW YOU DON'T WANT TO HEAR THIS. (And Docs don't tell you this because they want to keep you as patients.) This is my love language to you today - - love, Laura< ><

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Profile picture for lauracbaker @lauracbaker

RE: gastroparesis: I'm 75, type2 diabetic, but maintain good A1C (under 6.5). For all of you who are dealing with gastroparesis, I would like to say that you MUST stay active. Sitting is deadly; be sure you're up & about every hour or so and get some OUTSIDE time, brisk walking is absolutely required to keep your body operating. This keeps your vagus nerve awake, which stimulates everything else, including the lymph system. Having many friends with similar issues, I KNOW YOU DON'T WANT TO HEAR THIS. (And Docs don't tell you this because they want to keep you as patients.) This is my love language to you today - - love, Laura< ><

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@lauracbaker I’m an 82 year old Type 2 diabetic A1C 6.5. I was diagnosed with mild gastroparisis 3 years ago. It is apparently not mild anymore. If I eat just about any solid food I’m sick for 3 days. I mainly get a burning pain in my stomach and nothing relieves it. My quality of life is zero. Am going to Cleveland Clinic in 2 weeks. I don’t feel good pretty much every day.

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I'm so sorry to hear that. Can you get exercise of any kind? I'm sure that would help your digestive system. The medical community only treats symptoms with meds, and doesn't seem to search for "causes". I am hoping to prevent my gastroparesis from getting worse by eating right (no veg. oils, low carb, mostly whole foods) and being sure to keep my body working & moving. I hope you find some helps and start to feel better!

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I exercise 45 minutes each morning and walk also. I’m on a gastroparisis diet but sometimes it doesn’t matter what I eat. Thank you for the information.

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