Cerebellar Stroke - experience/treatment/recovery

Has anyone checked out the Keto Diet as a means of recovery? There are several studies out there showing promise. You can Google "Ketogenic Diet and stroke".

Hello @that_girl

We have had discussions about the Keto Diet, but not directly related to stroke recovery.

Here is a discussion in the Autoimmune Discussion group, https://connect.mayoclinic.org/discussion/effects-of-keto-food-plan-on-autoimmune-diseases/

Is your interest in stroke recovery personal or for a family member?

Hi, Teresa! I ran across the studies citing benefits while researching the Keto diet for Alzheimer's and TBI. It piqued my interest because my father had a stroke and my maternal grandmother had several TIA's. I also carry the APOE e4 gene. .

That is great that you are being so proactive, @that_girl. I can understand why you would have an interest in protecting yourself from strokes and TIAs by using all means necessary. Diet and nutrition are important ways to protect yourself.

I find genetic testing to be very interesting. Since you are aware of carrying the APOE e4 gene you must have had genetic testing done? When was that done? Were you having symptoms or problems that led to the genetic testing?

I had genetic testing done through 23 & Me. My daughter also has the APOE e4 gene. (She also inherited my Celiac genes, but so far has skipped the disease.) Since I am now 62 I am more aware of the average onset age closing in and am wondering if the diet could be a shield. I realize that major research funding for a diet/lifestyle change is hard to attain when no pharmaceuticals are involved, but hoping to see more research trials in the future.

@that_girl Once again, I appreciate all of the proactive steps you and your daughter are taking. I was not aware that 23&Me could provide such specific testing. That is good to know.

I agree that it would be good to see more research into diet/lifestyle changes for all health problems.

I had my stroke Dec. 3, 2016. I got help quick but left side was impaired ( limp & 30% usage in my left hand/shoulder). What about Stem Cell Development? Any good news you heard about this field for Stroke victims?

You should push to get an MRI scan. My (fairly minor) cerebellar stroke wasn't diagnosed until I finally had an MRI scan done (of head and neck with contrast). Then it was very clear.

Just adding my personal experience. 40 year old male in UK.
I had a right superior cerebellar stroke (artery infarct) three weeks ago. Suddenly developed intense nausea, headache and ringing in left ear. Lasting symptom is nausea whenever I move my eyes or head, or eat - or do anything in fact. Plus some nystagmus. This doesn't seem to be getting any better. Headache has gone though. Fairly minor compared to some of the people on this page. No paralysis or loss of feeling. I can walk for 15 minutes unaided.
Took me two weeks to get diagnosed. I was admitted to hospital for 3 days and they ran CT scans, lumbar puncture and many tests - but crucially no MRI. I 'passed' all of these tests and so was discharged with suspected migraine. When I saw a neuro specialist they immediately requested an MRI which clearly showed the infarct.
I'd love to hear of how long it has taken people to recover from minor cerebellar strokes.
Also anything which has helped recovery.

Hi everyone. My 52 year old husband who doesn't fit any of the typical risk profiles for stroke suffered from a cerebellar one yesterday in the night. He woke up suddenly in the middle of the night and vomitted violently.
We all thought it was a bad stomach and he tried to sleep it off, but the vomitting kept persisting. 5 hours later he was throwing up blood, having cold sweats and stumbling around the house.
An ambulance was called and he was brought straight to the stroke unit. CT and MRI scans revealed cerebellar infarkt(s). He was put on a drip and given aspirin + something else for the nausea.
We live in a country where English is not predominantly spoken, so sometimes it's hard to understand the doctors/ nurses.
My husband can do everything as per normal, except sit or stand without feeling dizzy and nauseous. Today there was an occupational therapist with him and he managed to stand on his feet for a full minute without throwing up.
He'll be brought in for various cardio tests today to see where the clots are stemming from.
Everything's a huge shock for us as he always kept active and healthy; he was a picture of health. I also struggle with guilt for not getting help earlier during the night, despite understanding that I couldn't have known just what was going on when the symptoms started.