Tymlos side effects

@cherraven I don't believe that is the case. People here have lowered their Tymlos dose and still had good results.

Just as an experiment, try only four or five clicks next time. See how you react.

@dbamos1945 I did reclast before envenity (which was brutal on me) I finished but I am still struggling a year later with the effects of the side effects. They say tylemos is a different class than envenity.

@njx58 I totally went off of it. I constantly have a dull headache, dizziness, nauseous and felt like I was in a fog. These drugs are just not good for me. I only did one click - I was told not to lower the dose.

@cherraven

You may want to consider what I was told when I asked a specialist in a related field about Evenity. I had relayed that I would be more comfortable taking half dose (only 1 of the 2 syringes for each dose) but the NP at the osteoporosis clinic had denied that request. Her response was that I could always refuse the second syringe. I have been known to walk out before getting CT angiograms when I encounter staff who will not listen to my concerns. (These were not critical scans.) Patients do not relinquish all power.

@normahorn thank you and I agree as I am going to cut the dose myself although she is testing my blood in 4 weeks as looking at full dose

@robe1018: Are you taking any drug for osteoporosis after the Evenity? If so, pkease share with dosage regimen. Thanks.

cherraven, very sensible. And I applaud your confession to Norma that you have decided to start at a low dose.
I should add that some are allergic to the preservative in Tymlos and cannot tolerate the medication, but your symptoms sound more like a calcium issue that your body may adjust to. There are the very few who develop hypercalcemia on Tymlos.
If your hip T scores are very low, your doctor may be concerned that you gain bone quickly (as in before you fracture).
I'm pleased your doctor will be testing you in several months. Your parathyroid level should be lower. Hope she tests for steady calcium levels and P1NP which will have risen. Your deceit won't be evidenced, but don't confess. Keep us apprised.