Sigh. PVC’s have me desperate. How to cope?
First off, thank you for reading. I know from reading posts that people have it worse than I do and I offer my utmost respect for those of you who do.
Briefly-
39 yo/m
Reasonably healthy. Non smoker. Stressful job.
So, a few years ago I started to have an occasional (painful) pvc that always got my attention. Once it hit 3-4 a day, I did like everyone else, and sound of the alarm and got the full gamut of testing.
Benign. Low dose Metoprolol.
Ok great.
Fast forward to these last two months, and the amount of PVCs I am having has increased 100 fold. They are all day. I went from a few a month to one a minute.
Panic. Doctor. Here we go again.
Once again, they are telling me that they are unifocal and harmless. These. Don’t. Feel. Harmless.
They absolutely stop me mid sentence every time. Each one is like a jump scare. My stomach drops like a roller coaster and I have a brief adrenaline shot. Like you’re scaring the heck out of me over and over. Just a Deep painful fear each time.
The doctors don’t seem very concerned. They recommended a magnesium supplement, which I am taking religiously.
No caffeine. No smoking. No alcohols.
Nothing.
This has destroyed my quality of live almost overnight. I wake up in anticipation. I go to sleep in fear.
Does it get better? Is this my life now? Even as I type this, I’m having one about every 30 seconds. I don’t want to go anywhere. I don’t want to do anything. I’m just petrified.
Wonder if switching from a beta to a calcium channel would work? Is this my life now?
The sad thing is… I “know” it’s supposed to be fine but why doesn’t it feel fine? Every shot of adrenaline warns me that I won’t be around much longer.
Just terrible.
Any input is appreciated.
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@undernova
The electrician is an electrophysiologist (EP). They are cardiology specialists in electrical functions of heart. I have been seeing one since 2006 at Mayo Jacksonville.
I had ablation done on my RV over 10 years ago and it worked. About a 2 years ago started getting a lot of PVCs (about every 3 beats) in my LV. I asked for ablation again but my EP wanted to try medications first before ablation as PVCs were coming from 3 different areas.
I assumed you had a Holter Monitor done.
Good luck!!
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1 ReactionI started having those after diagnosed with Hashimoto’s thyroiditis. Now I have small episodes of tachycardia and doctor said not to worry unless it sticks and won’t release. I hate them. Big thumps and skipped beats, or fast pounding for a few seconds. I wish I knew what is causing. Hormone related? Thyroid related? Food related?
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2 ReactionsTry http://www.vitalbiologics.com heart calm magnesium supplements. They work well to help reduce or make them go away .
I buy direct from company, read reviews. Been helping mine for 12 years. I only take when then act up .
@loyd1957 Your EP can determine via testing if you are a candidate for ablation to reduce the number of PVC’s you are experiencing. The source of tissue within your heart causing the PVC’s can often be located and destroyed during ablation. My PVC’s were reduced with ablation from a burden of 18% of heartbeats to 4%.
18% is a number considered high enough to eventually lead to heart failure. 4% is considered harmless. Hopefully, after possibly getting a positive result like that and understanding your specific case, you will be more able to stop worrying.
If you aren’t having conversations with your EP, find out why not. If unsatisfied, seek a better doctor by researching best docs and hospitals near you. Good luck.
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1 Reaction@wcuro Another suggestion is to have a loop recorder implanted under your skin.
It’s painless and outpatient. It is like a perpetual holter monitor. That way, you’ll probably be more able to stop worrying, knowing your record of heartbeats is being viewed by professionals. You will no longer have to wonder if you’re entering the danger zone or not. Others do it for you.
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1 Reaction@healthyhealing I know this was a year ago, but I really thank you for saying these things I have really bad days where I have 500 to 700 PVCs a day and it’s debilitating I feel like my quality of life has gone down and I have six kids that I’m trying to raise five boys you can imagine the stress, but it gets to the point where I feel like giving up sometimes it’s so hard. I’ve seen every doctor. You can imagine. I have an electrophysiologist a cardiologist a PCP a psychiatrist a psychologist a therapist. I’m on 25 mg metoprolol morning the night and .5 clonazepam up to three times a day as well as magnesium and potassium supplements. I also drink hydration packets once or twice a day and a lot of water. I’ve given up all caffeine. I haven’t drank alcohol in 15 years. I just don’t understand anymore. What to do. I feel so defeated because I’ll go three weeks with one or two here and there too a week like this past week where they’re every minute to two minutes and it just is so so distracting and disheartening.
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1 Reaction@kpryor1982 some suggestions:
1. Read The AFIB Cure by Day. You may find some other things to try.
2. Do you any problems with Sleep Apnea. You should verify that this not an issue.
3. Check your level of thyroid stimulating hormone - TSH. I’ve discovered that if my TSH is too low, I have more arrhythmias whereas if I keep it above 4 arrhythmias disappear. Be careful not to take TSH too high as there are other problems when TSH is too high.
4. If you can’t find natural solutions and meds aren’t working then consider an ablation. This the best treatment for AFIB and should reduce or eliminate your symptoms. Newer technology makes the procedure even safer.
@kpryor1982
Hi what helps me is a Long walk 30-45 mins every other day gives my mind & body a chance to take a break an recover (:-}
@chickenfarmer My TSH is always at about 3 or sometimes even lower.. , I have had episodes of a pounding heartbeat all my life...Sometimes I wake up at night because of a pounding heartbeat.. I am convinced that my sleep problem is because of my thyroid. ..My primary physician says no... I am at 81 years old and have thyroid nodules... What supplements do you take that raise your TSH level? am on a multitude of blood pressure medicines...I also suffer from Bradycardia
My situation is somewhat different from yours but in other ways similar. Because of cancerous nodules my thyroid was completely removed 35 yrs ago. I have been taking synthroid (levothyroxine) daily since that surgery. My Dr stressed that the best way to keep the cancer from recurring was to keep my TSH at a low value, typically less than 1.0. But recently I discovered that by lowering my hormone level I can reduce ectopic beats as well as AF episodes. I’ve found a sweet spot of TSH between 4.0 and 5.0. I’m still searching for an endocrinologist who can help me to fine tune the levothyroxine dose as too high TSH is not good for quality of life. A thyroid cancer surgeon told me enough time had elapsed since my thyroid ectomy that I shouldn’t worry about cancer reoccurrence and I could stop the suppression.