Sigh. PVC’s have me desperate. How to cope?

Posted by mattb4295 @mattb4295, Oct 16, 2022

First off, thank you for reading. I know from reading posts that people have it worse than I do and I offer my utmost respect for those of you who do.

Briefly-

39 yo/m
Reasonably healthy. Non smoker. Stressful job.

So, a few years ago I started to have an occasional (painful) pvc that always got my attention. Once it hit 3-4 a day, I did like everyone else, and sound of the alarm and got the full gamut of testing.

Benign. Low dose Metoprolol.

Ok great.

Fast forward to these last two months, and the amount of PVCs I am having has increased 100 fold. They are all day. I went from a few a month to one a minute.

Panic. Doctor. Here we go again.

Once again, they are telling me that they are unifocal and harmless. These. Don’t. Feel. Harmless.

They absolutely stop me mid sentence every time. Each one is like a jump scare. My stomach drops like a roller coaster and I have a brief adrenaline shot. Like you’re scaring the heck out of me over and over. Just a Deep painful fear each time.

The doctors don’t seem very concerned. They recommended a magnesium supplement, which I am taking religiously.

No caffeine. No smoking. No alcohols.

Nothing.

This has destroyed my quality of live almost overnight. I wake up in anticipation. I go to sleep in fear.

Does it get better? Is this my life now? Even as I type this, I’m having one about every 30 seconds. I don’t want to go anywhere. I don’t want to do anything. I’m just petrified.

Wonder if switching from a beta to a calcium channel would work? Is this my life now?

The sad thing is… I “know” it’s supposed to be fine but why doesn’t it feel fine? Every shot of adrenaline warns me that I won’t be around much longer.

Just terrible.

Any input is appreciated.

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

Profile picture for undernova @undernova

Hi. My PVC’s are bigeminy, which means that I have them every other heartbeat. Oddly, I’m not overwhelmed with symptoms. I just thought I was having anxiety. I do get some stabbing or jumping feelings at times but I always just made excuses for what it was. My cardiologist sent me to a heart “electrician” who scheduled me for an ablation next month to fix it.

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@undernova
The electrician is an electrophysiologist (EP). They are cardiology specialists in electrical functions of heart. I have been seeing one since 2006 at Mayo Jacksonville.

I had ablation done on my RV over 10 years ago and it worked. About a 2 years ago started getting a lot of PVCs (about every 3 beats) in my LV. I asked for ablation again but my EP wanted to try medications first before ablation as PVCs were coming from 3 different areas.

I assumed you had a Holter Monitor done.
Good luck!!

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I started having those after diagnosed with Hashimoto’s thyroiditis. Now I have small episodes of tachycardia and doctor said not to worry unless it sticks and won’t release. I hate them. Big thumps and skipped beats, or fast pounding for a few seconds. I wish I knew what is causing. Hormone related? Thyroid related? Food related?

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Try http://www.vitalbiologics.com heart calm magnesium supplements. They work well to help reduce or make them go away .
I buy direct from company, read reviews. Been helping mine for 12 years. I only take when then act up .

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Profile picture for loyd1957 @loyd1957

I started having those after diagnosed with Hashimoto’s thyroiditis. Now I have small episodes of tachycardia and doctor said not to worry unless it sticks and won’t release. I hate them. Big thumps and skipped beats, or fast pounding for a few seconds. I wish I knew what is causing. Hormone related? Thyroid related? Food related?

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@loyd1957 Your EP can determine via testing if you are a candidate for ablation to reduce the number of PVC’s you are experiencing. The source of tissue within your heart causing the PVC’s can often be located and destroyed during ablation. My PVC’s were reduced with ablation from a burden of 18% of heartbeats to 4%.
18% is a number considered high enough to eventually lead to heart failure. 4% is considered harmless. Hopefully, after possibly getting a positive result like that and understanding your specific case, you will be more able to stop worrying.
If you aren’t having conversations with your EP, find out why not. If unsatisfied, seek a better doctor by researching best docs and hospitals near you. Good luck.

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Profile picture for wcuro @wcuro

@loyd1957 Your EP can determine via testing if you are a candidate for ablation to reduce the number of PVC’s you are experiencing. The source of tissue within your heart causing the PVC’s can often be located and destroyed during ablation. My PVC’s were reduced with ablation from a burden of 18% of heartbeats to 4%.
18% is a number considered high enough to eventually lead to heart failure. 4% is considered harmless. Hopefully, after possibly getting a positive result like that and understanding your specific case, you will be more able to stop worrying.
If you aren’t having conversations with your EP, find out why not. If unsatisfied, seek a better doctor by researching best docs and hospitals near you. Good luck.

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@wcuro Another suggestion is to have a loop recorder implanted under your skin.
It’s painless and outpatient. It is like a perpetual holter monitor. That way, you’ll probably be more able to stop worrying, knowing your record of heartbeats is being viewed by professionals. You will no longer have to wonder if you’re entering the danger zone or not. Others do it for you.

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Profile picture for healthyhealing @healthyhealing

Dear Matt, it touched me so much to read your post as I'm sure it touched so many others on this page. You described these events perfectly... like an ongoing torment that always leaves you wondering if it will be your last breath.

I've had them bad for one year now (at first they were very gentle several years ago every now and again but then they increased to every minute like you)- they started over a very stressful family event out of the blue... all different forms from the pause and "punch in the chest" type, to the take your breath away and weakness in the knees type to the I feel like I'm going to die type.... and then the ongoing fear of when the next one will come--- pure torture and just not wanting to live the rest of my life like this.

I have since found great benefit and comfort-- and some days I would even say I am perfectly well. Here is what helped bring me relief and peace back to my life.

1) simply- start with diet- they are almost always triggered with indigestion. I started eating smaller meals of healthy foods (light protein, whole food starches and lightly cooked veggies) and not too much raw food or salad at one time. A digestive enzyme can be of great benefit taken with the meal. Also- I saw a chiropractor which found a "hiatal hernia" - a part of the stomach that slips above the diaphragm and put stress on the heart. I also used a massager/vibrator on the epigastric area of the stomach and that helped very much. Seeing a chiropractor / naturopath for a dietary adjustment and physical adjustment of the spine and hiatal hernia and starting a stretching plan will do absolutely wonders- I mean miracle wonders. I highly recommend the dietary book: Nature's Diet by Iverson

2) There is another book- Mind Body Prescription by Sarno-- I tell you this is really the heart and soul of the whole thing (pun intended). Every person I ever met with PVCs like us is a chronically nervous and stressed person. If you get command of this in your life-- everything will change... I mean everything. Dr. Sarno outlines how to do this step by step--- literally by telling your body to "stop it" and "I know you are trying to take my mind off the stress in my life, but you don't need to give me palpitations to do it." Also- meditate daily- 5 minutes minimum-- pray if you pray daily... and yoga several times a week... also- a quick jog - 1/4 mile daily will do wonders for both the digestion and the mental stress.

That is really the secret of it all- good nutrition and good calm lifestyle and outlook. Talking to people about your stressors in life will also greatly help, just reading the chat groups helps to know others are in it with you and they are getting through it. You will get better, you absolutely will- just focus on Peace and Love and KNOW that all will be okay.. . and it will. - Andrew

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@healthyhealing I know this was a year ago, but I really thank you for saying these things I have really bad days where I have 500 to 700 PVCs a day and it’s debilitating I feel like my quality of life has gone down and I have six kids that I’m trying to raise five boys you can imagine the stress, but it gets to the point where I feel like giving up sometimes it’s so hard. I’ve seen every doctor. You can imagine. I have an electrophysiologist a cardiologist a PCP a psychiatrist a psychologist a therapist. I’m on 25 mg metoprolol morning the night and .5 clonazepam up to three times a day as well as magnesium and potassium supplements. I also drink hydration packets once or twice a day and a lot of water. I’ve given up all caffeine. I haven’t drank alcohol in 15 years. I just don’t understand anymore. What to do. I feel so defeated because I’ll go three weeks with one or two here and there too a week like this past week where they’re every minute to two minutes and it just is so so distracting and disheartening.

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Profile picture for kpryor1982 @kpryor1982

@healthyhealing I know this was a year ago, but I really thank you for saying these things I have really bad days where I have 500 to 700 PVCs a day and it’s debilitating I feel like my quality of life has gone down and I have six kids that I’m trying to raise five boys you can imagine the stress, but it gets to the point where I feel like giving up sometimes it’s so hard. I’ve seen every doctor. You can imagine. I have an electrophysiologist a cardiologist a PCP a psychiatrist a psychologist a therapist. I’m on 25 mg metoprolol morning the night and .5 clonazepam up to three times a day as well as magnesium and potassium supplements. I also drink hydration packets once or twice a day and a lot of water. I’ve given up all caffeine. I haven’t drank alcohol in 15 years. I just don’t understand anymore. What to do. I feel so defeated because I’ll go three weeks with one or two here and there too a week like this past week where they’re every minute to two minutes and it just is so so distracting and disheartening.

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@kpryor1982 some suggestions:
1. Read The AFIB Cure by Day. You may find some other things to try.
2. Do you any problems with Sleep Apnea. You should verify that this not an issue.
3. Check your level of thyroid stimulating hormone - TSH. I’ve discovered that if my TSH is too low, I have more arrhythmias whereas if I keep it above 4 arrhythmias disappear. Be careful not to take TSH too high as there are other problems when TSH is too high.
4. If you can’t find natural solutions and meds aren’t working then consider an ablation. This the best treatment for AFIB and should reduce or eliminate your symptoms. Newer technology makes the procedure even safer.

REPLY
Profile picture for kpryor1982 @kpryor1982

@healthyhealing I know this was a year ago, but I really thank you for saying these things I have really bad days where I have 500 to 700 PVCs a day and it’s debilitating I feel like my quality of life has gone down and I have six kids that I’m trying to raise five boys you can imagine the stress, but it gets to the point where I feel like giving up sometimes it’s so hard. I’ve seen every doctor. You can imagine. I have an electrophysiologist a cardiologist a PCP a psychiatrist a psychologist a therapist. I’m on 25 mg metoprolol morning the night and .5 clonazepam up to three times a day as well as magnesium and potassium supplements. I also drink hydration packets once or twice a day and a lot of water. I’ve given up all caffeine. I haven’t drank alcohol in 15 years. I just don’t understand anymore. What to do. I feel so defeated because I’ll go three weeks with one or two here and there too a week like this past week where they’re every minute to two minutes and it just is so so distracting and disheartening.

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@kpryor1982

Hi what helps me is a Long walk 30-45 mins every other day gives my mind & body a chance to take a break an recover (:-}

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Profile picture for chickenfarmer @chickenfarmer

@kpryor1982 some suggestions:
1. Read The AFIB Cure by Day. You may find some other things to try.
2. Do you any problems with Sleep Apnea. You should verify that this not an issue.
3. Check your level of thyroid stimulating hormone - TSH. I’ve discovered that if my TSH is too low, I have more arrhythmias whereas if I keep it above 4 arrhythmias disappear. Be careful not to take TSH too high as there are other problems when TSH is too high.
4. If you can’t find natural solutions and meds aren’t working then consider an ablation. This the best treatment for AFIB and should reduce or eliminate your symptoms. Newer technology makes the procedure even safer.

Jump to this post

@chickenfarmer My TSH is always at about 3 or sometimes even lower.. , I have had episodes of a pounding heartbeat all my life...Sometimes I wake up at night because of a pounding heartbeat.. I am convinced that my sleep problem is because of my thyroid. ..My primary physician says no... I am at 81 years old and have thyroid nodules... What supplements do you take that raise your TSH level? am on a multitude of blood pressure medicines...I also suffer from Bradycardia

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My situation is somewhat different from yours but in other ways similar. Because of cancerous nodules my thyroid was completely removed 35 yrs ago. I have been taking synthroid (levothyroxine) daily since that surgery. My Dr stressed that the best way to keep the cancer from recurring was to keep my TSH at a low value, typically less than 1.0. But recently I discovered that by lowering my hormone level I can reduce ectopic beats as well as AF episodes. I’ve found a sweet spot of TSH between 4.0 and 5.0. I’m still searching for an endocrinologist who can help me to fine tune the levothyroxine dose as too high TSH is not good for quality of life. A thyroid cancer surgeon told me enough time had elapsed since my thyroid ectomy that I shouldn’t worry about cancer reoccurrence and I could stop the suppression.

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