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Craniopharyngioma Diagnosis & Immediate Surgery

Posted by jijianhua @jijianhua, Jan 16 11:05pm

These are my son's CT imaging data. Could you please check if it indicates a craniopharyngioma and if immediate surgical resection is necessary?
My son was born on May 3, 2014. Currently, he is 125 centimeters tall and weighs 26 kilograms. He has normal eyesight and no symptoms such as diabetes insipidus. Thank you.
CT findings: Thickening of the pituitary stalk is noted, with a mass-like mixed-density lesion visible. Obvious calcification is present within the lesion, measuring approximately 13×14×15mm.
Additionally, I apologize, but although I have a link to the imaging data, I cannot share it as a new user.

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Mentor
William Olsen, Volunteer Mentor | @hrhwilliam | Jan 17 8:52am

Hello and welcome to Connect. As a parent I can understand how frightening it is to have a child with any diagnosis, let alone a craniopharyngioma. This is one of those oddities where despite the fact that it is an unwelcome growth, it at least is not considered cancerous. Yet it must be dealt with.

All of the members here on Connect are patients who help other patients. Some of us naturally may have a medical background yet we would not presume to offer up any sort of diagnosis or second opinion however. Your best choice would be to seek out likely a larger clinic or hospital which has extensive experience in dealing with brain tumors. Else, get started on your current care team recommendations. Time is critical.
Likely there are members here who have gone down this road and might be an asset to you in understanding and dealing with this diagnosis. We can certainly let this simmer a while giving others a chance to pipe in with personal experience, of which I have none in this particular malady. In the meantime, courage.

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jijianhua | @jijianhua | Jan 19 12:59am
In reply to @hrhwilliam "Hello and welcome to Connect. As a parent I can understand how frightening it is to..." + (show)
Profile picture for William Olsen, Volunteer Mentor @hrhwilliam

Hello and welcome to Connect. As a parent I can understand how frightening it is to have a child with any diagnosis, let alone a craniopharyngioma. This is one of those oddities where despite the fact that it is an unwelcome growth, it at least is not considered cancerous. Yet it must be dealt with.

All of the members here on Connect are patients who help other patients. Some of us naturally may have a medical background yet we would not presume to offer up any sort of diagnosis or second opinion however. Your best choice would be to seek out likely a larger clinic or hospital which has extensive experience in dealing with brain tumors. Else, get started on your current care team recommendations. Time is critical.
Likely there are members here who have gone down this road and might be an asset to you in understanding and dealing with this diagnosis. We can certainly let this simmer a while giving others a chance to pipe in with personal experience, of which I have none in this particular malady. In the meantime, courage.

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thank you very much.@hrhwilliam

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Moderator
Colleen Young, Connect Director | @colleenyoung | Jan 30 7:16pm

@jijianhua, if you would like to request an appointment with Mayo Clinic experts, you can get started here: https://mayocl.in/1mtmR63

How is your son doing?

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jijianhua | @jijianhua | Feb 4 3:10am
In reply to @colleenyoung "@jijianhua, if you would like to request an appointment with Mayo Clinic experts, you can get..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

@jijianhua, if you would like to request an appointment with Mayo Clinic experts, you can get started here: https://mayocl.in/1mtmR63

How is your son doing?

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@colleenyoung He is a third-grade primary school student. Currently, he has no symptoms other than short stature.

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