Night time Incontinence

Posted by richmaple @richmaple, 9 hours ago

2 year post robotic prostate removal, I still have night time (sleep) incontinence, lost full bladder control. any insights?

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Interesting that you have the loss of bladder control at night while I have it during the day if standing or sitting, but at night, I am totally continent.

Because of the problem during the day, I really can’t travel much because I have to worry about pads getting filled within a couple of hours if I’m moving around a lot. I’m having an AUS installed on April 2. That should resolve my problem completely.

If you have had radiation, then really the only option is the AUS, If you have not had radiation and don’t think you will need it in the future then proACT Can Help help you get totally continent? You need to speak to a urologist that specializes in an incontinence.

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Profile picture for jeff Marchi @jeffmarc

Interesting that you have the loss of bladder control at night while I have it during the day if standing or sitting, but at night, I am totally continent.

Because of the problem during the day, I really can’t travel much because I have to worry about pads getting filled within a couple of hours if I’m moving around a lot. I’m having an AUS installed on April 2. That should resolve my problem completely.

If you have had radiation, then really the only option is the AUS, If you have not had radiation and don’t think you will need it in the future then proACT Can Help help you get totally continent? You need to speak to a urologist that specializes in an incontinence.

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@jeffmarc Me, too.
No issues at night. Must be a gravity thing.
Daytime was awful.

Good luck with the AUS. Just be aware that it's not waterproof, like I expected.
Leakage still can occur during urgency. Not much, but still annoying.
Totally worth doing, though.

Rich, how's your continence during the day? 2 years is too long to put up with that.
They usually consider an artificial urinary sphincter or other interventions if issues continue beyond 1 year.

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Profile picture for peterj116 @peterj116

@jeffmarc Me, too.
No issues at night. Must be a gravity thing.
Daytime was awful.

Good luck with the AUS. Just be aware that it's not waterproof, like I expected.
Leakage still can occur during urgency. Not much, but still annoying.
Totally worth doing, though.

Rich, how's your continence during the day? 2 years is too long to put up with that.
They usually consider an artificial urinary sphincter or other interventions if issues continue beyond 1 year.

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@peterj116
I do not understand what you mean by not waterproof. The AUS is completely inside the body.

If you are in water, you would not open the valve so it is not possible for water to get into it In those conditions.

I sure wouldn’t worry about it when I went in the shower.

If you mean that water could get up your penis if you’re in it, Wouldn’t that be true whether you had an AUS or not?.

I know there is still a little bit of Leakage possible, but the most you would need is a thin pad in your underwear. That’s not really a problem for me over the last six years, I’ve gone from thin pads to thick ones. Thin is easy.

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Profile picture for jeff Marchi @jeffmarc

@peterj116
I do not understand what you mean by not waterproof. The AUS is completely inside the body.

If you are in water, you would not open the valve so it is not possible for water to get into it In those conditions.

I sure wouldn’t worry about it when I went in the shower.

If you mean that water could get up your penis if you’re in it, Wouldn’t that be true whether you had an AUS or not?.

I know there is still a little bit of Leakage possible, but the most you would need is a thin pad in your underwear. That’s not really a problem for me over the last six years, I’ve gone from thin pads to thick ones. Thin is easy.

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@jeffmarc Sorry... I should have said water-tight.
I assumed that the cuff had a vice-like grip on the urethra & I could control when I want to pee.
Not the case.
Still a little leakage when i have to run to the bathroom.

I haven't used pads since the op & have some very good absorbent underpants instead.

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Profile picture for peterj116 @peterj116

@jeffmarc Sorry... I should have said water-tight.
I assumed that the cuff had a vice-like grip on the urethra & I could control when I want to pee.
Not the case.
Still a little leakage when i have to run to the bathroom.

I haven't used pads since the op & have some very good absorbent underpants instead.

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@peterj116
They have different diameter cuffs, if you have had radiation maybe they can’t use the tightest. I wonder how they pick them?

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Profile picture for jeff Marchi @jeffmarc

@peterj116
They have different diameter cuffs, if you have had radiation maybe they can’t use the tightest. I wonder how they pick them?

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@jeffmarc I did ask my urologist when he activated & he said it was based on blood pressure.... or something. Wish I'd paid more attention.

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Profile picture for jeff Marchi @jeffmarc

Interesting that you have the loss of bladder control at night while I have it during the day if standing or sitting, but at night, I am totally continent.

Because of the problem during the day, I really can’t travel much because I have to worry about pads getting filled within a couple of hours if I’m moving around a lot. I’m having an AUS installed on April 2. That should resolve my problem completely.

If you have had radiation, then really the only option is the AUS, If you have not had radiation and don’t think you will need it in the future then proACT Can Help help you get totally continent? You need to speak to a urologist that specializes in an incontinence.

Jump to this post

@jeffmarc no radiation. going to a diff urologist tomorrow afternoon.

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