Heart Rhythm Conditions – Welcome to the group

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

Profile picture for ness125 @ness125

@mmst4 Hello, I was diagnosed with an incomplete RBBB. I’m a healthy 72 year old female and have had PVC’s since I was in my 30’s. No other heart issues. Was on Atenolol for a long time until the PVC’s became more frequent. I was switched to Dilitiazem 120 mg daily which didn’t help much. My cardiologist added Metroprolol 25 mg daily. I was hesitant to take it, but I’ve been taking it a few weeks and I believe it’s helping and so far no side effects. I still get PVC’s but not as many. I’m not saying that Metroprolol will work for you, but I wanted to give you my input and I hope it helps.

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@ness125
Thank you for your input. You are the first person I’ve checked with that has gotten along with the metoprolol. My husband takes it and has been very unhappy with the effects it has on him. It’s hard enough trying to stay active without taking something that will make me tired. I’ve been praying about it and that has helped. Thanks again.

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Profile picture for mmst4 @mmst4

Hello! I’m going by name MMST4.
Diagnosed w/RBBB. The increasing episodes led me to cardiologist. He prescribed metoprolol 25mg. I haven’t started it because I didn’t like symptoms assoc. With it. I went off caffeine and very eat minimal chocolate. I drink 2 redd’s hard apple a week when I visit mom. I am currently trying to increase exercise I read on this site someone said it worked for them. My main concern is am I doing damage to my heart by not taking med. I’m 66yrs old. I read it causes tiredness, possible depression, dizziness. Im healthy otherwise.

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@mmst4 Metoprolol is a beta blocker. Specifically, it blocks the beta-adrenergic receptors in the heart and prevents your heart from racing, especially when you are emotionally or physically stressed and your adrenal glands, which sit atop each kidney, secrete more of the fight-or-flight hormone called adrenalin (epinephrine in some medical circles). The results are two: slower rate and less forceful contractions when they happen...at that slower rate. Accordingly, metoprolol is a 'rate control' medication, and it is also sometimes prescribed for 'incipient hypertension' because of that one property, less forceful contractions.

Your physician must have done a pretty comprehensive assessment of you and decided that metoprolol, at least initially, and for now, is worth trialing to see how it works for the desired effect, but also that it doesn't make you truly miserable and not want to live anyway...or at least to continue to take it voluntarily. If you find that your spidey sense is telling you the metoprolol is degrading your performance in some measurable way, let him/her know!

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Hello, I am new to the group (also wrote a post in another chat). I am here because I have PVCs. I did have a heart attack in the past, and the PVCs started sometime after that.

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I am 54 years old. Female. Living with SVT ,on metoprolol for ten years. Recently episodes have ramped up. Cardiologist appointment tomorrow. Very nervous at this point. Haven’t ever been this anxious before and that’s making things much worse. They want to put me on flecainide and I’m terrified. Anyone out there have any experience on this drug ?

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Profile picture for grandmaR @grandmar

Hi,

I'm Ronnie. I am 63 years old. I am a wife of 43 years. I am a mother of a son (39 years old), and a daughter (42 years old). I am a grandmother of 3 who stole my heart (pardon the pun). A 7 year old granddaughter (my daughter's daughter), a 6 1/2 year old granddaughter and 4 year old grandson (both my son's children). A mother-in-law to the best kids. I am also a retired educator.

About 4-5 years ago I was having a rapid heartbeat and I did not feel well. My husband and I were about to leave on a trip and he wouldn't go until I went to our doctor. Now, I've always had a rapid heartbeat when I went under for surgery, but not just like this. The doctor sent me right to the hospital. I didn't have any pain but she was concerned. When I left the hospital, it was suggested that I have a full cardio work up. I did. Nothing was wrong except for the beating of my heart which was rapid. The doctor said that it is just my natural heart rate.

Two years ago, I began the process for weight loss surgery. Part of the process was having a full cardio work up. I did and the results were the same. My heart is fine. My heart rate was up during surgery. Again, it is a natural part of me. I let all new docs know and when I have a procedure where I will be put under, I let them know as well.

Today, my heart rate fluctuates depending on my anxiety and pain level. I suffer from anxiety and chronic pain. Even when I feel good and have no pain, my heart is tachy. It is something I have to live with.

So I am happy to get to know others like me.
ronnie

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I have berry suffering for years myself
These doctors just want to pack your body with side effects meds
I get severe palpitation every day
I try breathing exercises at times
However I get anxious an anxiety with it
I learned to live with it but it is debilitating

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Profile picture for anjimlynch @anjimlynch

I am 54 years old. Female. Living with SVT ,on metoprolol for ten years. Recently episodes have ramped up. Cardiologist appointment tomorrow. Very nervous at this point. Haven’t ever been this anxious before and that’s making things much worse. They want to put me on flecainide and I’m terrified. Anyone out there have any experience on this drug ?

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Profile picture for anjimlynch @anjimlynch

I am 54 years old. Female. Living with SVT ,on metoprolol for ten years. Recently episodes have ramped up. Cardiologist appointment tomorrow. Very nervous at this point. Haven’t ever been this anxious before and that’s making things much worse. They want to put me on flecainide and I’m terrified. Anyone out there have any experience on this drug ?

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@anjimlynch Flecainide is a very popular, and usually well-tolerated, anti-arrhythmic drug. Some people, when their episodes come and go, now and then, use what is called a PIP approach to Flecainide, or 'pill-in-pocket.' You keep a single tablet in your purse or wallet and only pop it down if you happen to have a run of SVT that lasts over 5 minutes. Many self-correct in just a few minutes, but if it persists, you get the tablet and wash it down. Takes about 40 minutes typically if your stomach has a recent meal in there. Many cardiologists suggest the PIP approach to their patients whose arrhythmia is transient.

Your cardiologist should, depending on how up-to-speed he/she is, offer to refer you to an electrophysiologist, or an EP for short. They are cardiac electricians, specialists, whose job is to assess your heart electrically and to then suggest a remedy for you, most often either drugs, a catheter ablation (more in just a minute), or a pacemaker. A lot depends on how symptomatic you are since occasional SVT and atrial fibrillation are not problematic. Only if the total 'burden' approaches 3% of all heartbeats in a 24 hour period. So, how you feel, and how you communicate its effects on you, will be as important to the EP and cardiologist as the disorder presents heart deterioration typically. Symptoms matter, especially if they make you miserable, and especially if they happen a lot.

Catheter ablation is day surgery where the EP enters your heart chambers with a thin hollow wire and causes scar tissue around places on the chamber walls where rogue electrical signals are causing chaos. This sounds drastic and terrible, but it's really very straightforward. The scar tissue creates a dam around those 'foci' by preventing the signals from spreading. It is the spreading electrical impulses that cause the atria to beat, but they're also still beating to the normal signal coming from the SA node, the 'sino-atrial' node with is the pacemaker for the heart. You can watch videos on YouTube about catheter ablation. I have had two. You're home that evening, and if it's done well, you can expect a normally beating heart for years afterward.

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Profile picture for gloaming @gloaming

@anjimlynch Flecainide is a very popular, and usually well-tolerated, anti-arrhythmic drug. Some people, when their episodes come and go, now and then, use what is called a PIP approach to Flecainide, or 'pill-in-pocket.' You keep a single tablet in your purse or wallet and only pop it down if you happen to have a run of SVT that lasts over 5 minutes. Many self-correct in just a few minutes, but if it persists, you get the tablet and wash it down. Takes about 40 minutes typically if your stomach has a recent meal in there. Many cardiologists suggest the PIP approach to their patients whose arrhythmia is transient.

Your cardiologist should, depending on how up-to-speed he/she is, offer to refer you to an electrophysiologist, or an EP for short. They are cardiac electricians, specialists, whose job is to assess your heart electrically and to then suggest a remedy for you, most often either drugs, a catheter ablation (more in just a minute), or a pacemaker. A lot depends on how symptomatic you are since occasional SVT and atrial fibrillation are not problematic. Only if the total 'burden' approaches 3% of all heartbeats in a 24 hour period. So, how you feel, and how you communicate its effects on you, will be as important to the EP and cardiologist as the disorder presents heart deterioration typically. Symptoms matter, especially if they make you miserable, and especially if they happen a lot.

Catheter ablation is day surgery where the EP enters your heart chambers with a thin hollow wire and causes scar tissue around places on the chamber walls where rogue electrical signals are causing chaos. This sounds drastic and terrible, but it's really very straightforward. The scar tissue creates a dam around those 'foci' by preventing the signals from spreading. It is the spreading electrical impulses that cause the atria to beat, but they're also still beating to the normal signal coming from the SA node, the 'sino-atrial' node with is the pacemaker for the heart. You can watch videos on YouTube about catheter ablation. I have had two. You're home that evening, and if it's done well, you can expect a normally beating heart for years afterward.

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@gloaming thank you very much for the reply. It was very helpful. I have all of my notes for tomorrow’s appointment otherwise I’ll get in there and forget half of my questions. I’ve had so many breakthrough episodes on the metoprolol that I feel like if ablation is an option for me that’s the road I need to take. I am scared of all of it but something needs to get me back on track.

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In reply to @okanda "@grandmar" + (show)

@okanda it’s amazing what we learn to live with. Although scary and uncomfortably unpredictable I wish you the best of luck. It really is helpful to know we are not alone.

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