Occipital Neuralgia Headache: Terrible pain lasting weeks, what helps?

@suszy39 I had a nerve block and it has made a difference. The purpose of the nerve block is to see if the occipital nerves are the culprit. So having the nerve block I shouldn’t have any issues in my head for now. They will sometimes do up to two or three before they would do an ablation of the occipital nerves. They want to be definitely sure before they do an ablation. When January 17th hits it will be 11 months since I had head pressure and blurry vision and also had seen Doctors and gotten nowhere. Now I finally feel like I am getting somewhere. I will see my Dr. on February 10th and when I find out what is next I will let you know. The nerve block was so easy. I can tell you I had head pressure for many days and it sucks. The ablation would burn the occipital nerves and eventually of course they will regenerate. That could be possibly 6-12 months or more. Everyone might be different. But ablation can be done again. I will keep in touch for sure. It may be a bit but I will let you know. @rnlorena

@suszy39 I had a nerve block and it has made a difference. The purpose of the nerve block is to see if the occipital nerves are the culprit. So having the nerve block I shouldn’t have any issues in my head for now. They will sometimes do up to two or three before they would do an ablation of the occipital nerves. They want to be definitely sure before they do an ablation. When January 17th hits it will be 11 months since I had head pressure and blurry vision and also had seen Doctors and gotten nowhere. Now I finally feel like I am getting somewhere. I will see my Dr. on February 10th and when I find out what is next I will let you know. The nerve block was so easy. I can tell you I had head pressure for many days and it sucks. The ablation would burn the occipital nerves and eventually of course they will regenerate. That could be possibly 6-12 months or more. Everyone might be different. But ablation can be done again. I will keep in touch for sure. It may be a bit but I will let you know. @rnlorena

@rnlorena I had an ablation no change. They said I could have another. My nerve shot is tomorrow, they usually last three months, but I am adding other tips so here goes, My Pain Dr. is great.

Hi!
Im 28 years old and have occipital neuralgia for the last 10 years. My symptoms are a-typical, slowly getting stronger until they reach 7-10 on the pain scale and last for 14-30 hours. I have those attacks usualy 2 times per week.
Im getting Oxcarbazepine. That helped me to get it down to 1 time per week. Also, for an attack im currently using morphine. Opioids are the only medication that helped me to be pain-free in an attack.

Hi @sinyaale - welcome to Mayo Clinic Connect. The attacks you have sound painful.

Hoping that here you can meet others taking about occipital neuralgia headaches, such as @suszy39 @rnlorena @pierwell @laura1970.

What would you say are you future hopes for your condition and your treatment, sinyaale?

@rnlorena I had an ablation no change. They said I could have another. My nerve shot is tomorrow, they usually last three months, but I am adding other tips so here goes, My Pain Dr. is great.

Hi @sinyaale - welcome to Mayo Clinic Connect. The attacks you have sound painful.

Hoping that here you can meet others taking about occipital neuralgia headaches, such as @suszy39 @rnlorena @pierwell @laura1970.

What would you say are you future hopes for your condition and your treatment, sinyaale?

@sinyaale Welcome this is a great place to bring your thoughts, suggestions, to fellow folks
who totally understand where you are out. Many good tips, I am flyiing with all of them.

Concerned ON Person

@suszy39 Having had an ablation and they burnt the nerves I would be asking why it didn't help. That is truly strange. I will be sure and bring that up to my Dr. when I see her. My question will be this. If you do an ablation what are my chances of it not working? I definitely will be questioning those things. @rnlorena