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Problems post-Kidney/Liver transplant
My son (25 yrs. old) had his transplant was at Barnes-St. Louis...Creatinine slowly rising a month after transplant. Doctors have diagnosed stent problems...inflammation causing blockage and urine back-up in kidney. Removed stent, inserted cathetar for a few days, now re-stented and hope for the best....I would like to get a second opinion from Mayo. Is there a way to present the case without traveling from St. Louis?
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@skittles25, I just now came upon your wonderful message! I am thrilled to hear this!!
I am in a rush right now - I will get back to you later.
Hugs, Rosemary
@skittles25, Happy transplant anniversary to your son! Thank you for sharing the updated information about your son. I know this is the answer to your prayers.
I feel great relief for you that he is doing well and walking daily. Now he (and you) can begin to enjoy the benefits of his transplant.
What kind of follow-up will be needed? Did you go to Mayo Clinic?
Rosemary
No, he went to Barnes St. Louis. He will have follow-up in a year with liver, 6 mos. for kidney. Monthly labs.
Thanks so much.
@skittles25, That worked out great for you! Being closer to home will make any return trip so much easier for you. I have an annual followup that includes both liver and kidney. I now have routine labs every 3 months, but remember that I am 8 years post transplant.
I would like to share the Transplant Pages with you and your son. I think that you will find the Newsfeed to be particularly helpful as your son continues to live with his new organs. It is regularly updated and contains accurate transplant information by the transplant staff.
https://connect.mayoclinic.org/page/transplant/
You know that you are always invited to join in any of out discussions on Connect.
Rosemary
@skittles25
Right now there are some newer members who are asking questions about being pre-transplant caregivers. I think that they would love to meet you and learn from your experience.
https://connect.mayoclinic.org/discussion/are-there-any-other-pre-liver-transplant-caregivers-out-there/
Let me know, if you would like for me to link you directly to that conversation.
Rosemary