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Mayo seeking volunteers: Chemo-Induced Peripheral Neuropathy study
Mayo Clinic is seeking volunteers (patient + family caregiver) for a research study on Chemo-Induced Peripheral Neuropathy (CIPN).
The purpose of this study is to assess the impact of a family caregiver massage technique that can help cancer survivors with CIPN. Symptoms of CIPN include: Numbness/pain/tingling in the fingers, toes, hands, or feet.
You may be eligible to participate if you:
- Are 18+ years of age
- Have been treated with certain kinds of chemotherapy for any type of cancer at least 6 months ago
- Have moderate to severe symptoms of CIPN
Participation involves you and a family member (spouse, intimate partner, friend, or other family member) being randomly assigned to one of three groups. Two groups will be assigned to use one of two different massage techniques via an online platform. The third group will receive standard care and is able to participate in the massage program after completing the study. All three groups will provide us with weekly reports and self-reporting of CIPN symptoms.
The functions will be assessed using surveys at enrollment, six weeks, and twelve weeks. Study participation is a total of 12 weeks. You will be compensated for your time spent in this study (up to $240).
No in-person visits are required. Massage techniques are provided online.
You do not need to be an existing Mayo patient to participate.
For more information, contact a member of the study team at (904) 953-5102 or (904) 953-8855.
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Man I hate that you had to experience that on your own. I'm thankful fir my with and others that prayed for me and supported me.. jeffmarc was truly a blessing in guiding me in the best way to go; glad you have lots of support now. I meant thankful for my Wife
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1 Reaction@asolidrock Mayo was not my first choice. Each provider I went to, had a different experience. Came to Mayo out of frustration, and not having clarity on how men get breast cancer. Mayo spent 4 days and over a dozen tests before I made the decision. Mayo educated me on everything. I lost my father 3 yrs prior, which made managing alone difficult as I had to manage my mom’s emotions and others. My dad was physically handicapped and self-cared, I was a chip of the old block. 🙂
At work, because I didn’t die, I felt people were skeptical if I had cancer. I was able to return to office, 6 weeks after surgery and worked from home during chemo. People are weird and until you have cancer, there will be skeptics.
I was interviewed in May 2025, for cancer podcast. How did I do it, process, self care, manage emotions, anxiety attacks. My goal is share the podcast with as many men, or Asian men as possible as we tend to hide diagnosis.
https://podcasts.apple.com/us/podcast/the-cancer-caregiver/id1504166813
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1 Reactioni signed up to have Mayo look at my carcinoid in the mesentery, gave all my insurance etc. supposed to call me they gave a date and no one called. I have found no one wants to take care of it no radiation. now i will start the shots. Does the light therapy work with this. am looking for a cure and no one has told me how to avoid all the possible side effects or if it will even work. "laneotide" not spelled corrrectly
My neuropathy was definitely the result of prednisone that I took with my chemotherapy treatment from 2019 until 2022. Historically, I could assist you but to actively do it now I cannot. It would be nice to know that there may be different treatments that do not require prednisone but at that time my doctor was successful at getting me in remission. So I won't complain but my med definitely caused my neuropathy along with other changes.
@stooth Are you saying that Prednisone is used in this study?
@dfstroup1130, if you haven’t already, contact a member of the study team at (904) 953-5102 or (904) 953-8855.
You may also wish to follow the Breast Cancer forum and join the discussions here:
- Breast Cancer https://connect.mayoclinic.org/group/breast-cancer/
I have already spoken with a member of your study team. What else will I need to do?
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