Mayo seeking volunteers: Chemo-Induced Peripheral Neuropathy study

Posted by Colleen Young, Connect Director @colleenyoung, Aug 11 12:14pm

Mayo Clinic is seeking volunteers (patient + family caregiver) for a research study on Chemo-Induced Peripheral Neuropathy (CIPN).

The purpose of this study is to assess the impact of a family caregiver massage technique that can help cancer survivors with CIPN. Symptoms of CIPN include: Numbness/pain/tingling in the fingers, toes, hands, or feet.

You may be eligible to participate if you:

Are 18+ years of age
Have been treated with certain kinds of chemotherapy for any type of cancer at least 6 months ago
Have moderate to severe symptoms of CIPN

Participation involves you and a family member (spouse, intimate partner, friend, or other family member) being randomly assigned to one of three groups. Two groups will be assigned to use one of two different massage techniques via an online platform. The third group will receive standard care and is able to participate in the massage program after completing the study. All three groups will provide us with weekly reports and self-reporting of CIPN symptoms.

The functions will be assessed using surveys at enrollment, six weeks, and twelve weeks. Study participation is a total of 12 weeks. You will be compensated for your time spent in this study (up to $240).

No in-person visits are required. Massage techniques are provided online.
You do not need to be an existing Mayo patient to participate.

For more information, contact a member of the study team at (904) 953-5102.

Interested in more discussions like this? Go to the Cancer: Managing Symptoms Support Group.

rashida | @rashida | Aug 12 11:27pm

@colleenyoung are Canadians eligible?

murray3 | @murray3 | Aug 13 1:04am

This appears to be a very worthwhile study sponsored by the Mayo Clinic. I had chemo-induced peripheral neuropathy brought on 5 Bendamustine & Rituximab chemotherapy cycles that commnced May of 2023. Unfortunately, chemotherapy proved ineffective on me and, as a result, my 6th cycle was cancelled. Since November 2023, I have been on the BTK Inhibitor Zanubrutinb.

I underwent a 2 hour EMG in June-July 2024 which confirmed my diagnosis as severe Axonial Polyneuropathy. My peripheral neuropathy is well under control now since I started regular weekly manual and electro-acupuncture treatments July 2024 from a Doctor of Acupuncture 3 hours away from me. She is currently 1 of only 5 such trained and certified Doctors of Acupuncture, Ac in all of Canada. Once my peripheral neuropathy was resolved, I then began similat acupuncture treatments for both serious lumbar spine issues as well as for both of my severely osteoarthritic knees. As well as doing these treatments, I also have maintenance treatments for my original concerns (although these treatments are at a much lesser frequency now).

I would think that based upon the information I have just shared that I wouldn't qualify for the Mayo Clinic study.

aardvark2118 | @aardvark2118 | Aug 13 8:51am

Wish there was a self massage component for those without a caregiver

gdj | @gdj | Aug 13 2:55pm

I'd volunteer. I have significant neuropathy in my feet. Take Lyrica. Have tried other treatments. Like acupuncture.

Gary Jensen

kathan55 | @kathan55 | Aug 14 3:43pm

I read this and it’s very interesting! I’ve had a few massages, but can’t afford them on a regular basis.
I called the number above and reached the voicemail. I left a message and hope they call me back so I can get more information.

Colleen Young, Connect Director | @colleenyoung | Aug 15 9:22am

@rashida @aardvark2118 and @murray3, please call study coordinator to confirm eligibility for the study. 1 (904) 953-5102

aardvark2118 | @aardvark2118 | Aug 15 11:22am

In reply to @colleenyoung "@rashida @aardvark2118 and @murray3, please call study coordinator to confirm eligibility for the study. 1 (904)..." + (show)

Thank you. Just called and left a message. I would love to participate but just don’t have a caregiver

Ann Dunshee | @anndunshee | Aug 15 12:58pm

In reply to @aardvark2118 "Wish there was a self massage component for those without a caregiver" + (show)

Good afternoon.

Unfortunately, at this time this study requires two people. The person providing the massage can be any trusted friend or family member as long as they are able to complete this 12-week study.

I am not aware of any single-person massage technique study.

If you have any other questions, please reach out to me 904-953-5102, dunshee.ann@mayo.edu
Thank you. Ann

aardvark2118 | @aardvark2118 | Aug 15 1:13pm

In reply to @aardvark2118 "Thank you. Just called and left a message. I would love to participate but just don’t..." + (show)

Just spoke to coordinator and you need to have a caregiver or someone to do the massage three times a week, 15-20 minutes. Not an option fir me

kathan55 | @kathan55 | Aug 15 3:30pm

In reply to @kathan55 "I read this and it’s very interesting! I’ve had a few massages, but can’t afford them..." + (show)

I got a call from the Mayo Clinic regarding the massage therapy!! I told the lady I’m in the middle of moving, but I’m very interested. Hopefully I’ll be settled soon and she said to call her back.
They teach you and a caregiver how to do the massage therapy. I’m not sure if my daughter’s hands are strong enough to do it, but eventually, I’ll talk to her about it. I was really pleased to hear back from them.