The Emotional Side of Hearing Loss

Posted by Julie, Volunteer Mentor @julieo4, Jun 13, 2022

Often those of us who experience hearing loss, especially that of adult onset, feel that no one understands what we are going through. It can affect our self esteem, along with decisions we make about our social lives, and even our work lives.

There is a new Facebook discussion group that addresses this subject. Having followed it the past few days, I realize how many people need to know they are not alone in dealing with this invisible disability. It's also obvious that many find general conversation about the emotional side of HL helpful. Sometimes we just need to talk.

If you're willing to share: How does hearing loss affect you emotionally?

Interested in more discussions like this? Go to the Hearing Loss Support Group.

Profile picture for carolman210 @carolman210

I was diagnosed with Ménière’s disease & have tried several different hearing aids & still have trouble understanding completely. I go to a MD audiologist and he gives me the report. I then take the report to Costco to program my hearing aids. Are there any new hearing aids that have proven to be exceptional??

Jump to this post

@carolman210 A while back there was a discussion about issues related to Meniere's Disease & Hearing Aids. You may want to go back and look at the discussion:
Meniere's and Hearing Aid Recommendations
https://connect.mayoclinic.org/discussion/mieniers-hearing-aid-recommendations/
I encourage anyone who has Meniere's to join in. Mutual help matters!

REPLY
Profile picture for Julie, Volunteer Mentor @julieo4

@carolman210 A while back there was a discussion about issues related to Meniere's Disease & Hearing Aids. You may want to go back and look at the discussion:
Meniere's and Hearing Aid Recommendations
https://connect.mayoclinic.org/discussion/mieniers-hearing-aid-recommendations/
I encourage anyone who has Meniere's to join in. Mutual help matters!

Jump to this post

@julieo4 thank you!!

REPLY
Profile picture for Julie, Volunteer Mentor @julieo4

@jssjss This is very typical for people who have adult onset hearing loss. It can be a major life change. It affects our ability to be spontaneous. That alone confuses people we visit with.

It's so important to be upfront about how your hearing loss is affecting you in those personal discussions. There's nothing wrong with asking your friends to meet you in a quieter environment than what has been traditional.

Do you use hearing aids? If not, getting well fitted hearing instruments may be a huge step up for you. If you have them but that's not the case, did your provider talk to you about add on technology? How to connect to it? Options in your personal technology?

Most major hearing aid brands are designed to connect to small microphones that can be hand held or set on a table during discussion. They show, so a lot of people don't use them. I learned that when I used something that 'showed' people were curious about them, asked questions, said they knew people who needed them, etc. People generally do want to be helpful when they know how. My hand held mini mic 2+ goes everywhere with me.

Besides the small microphones, there are apps that can be added to your cell phone that provide captions in conversation. Ask your provider about those.

Providers, in general, do not take enough time to educate people with adult onset hearing loss. We need to insist they help us this way. Be assertive. If possible find a support group in your area where people come together to share their experiences. The Hearing Loss Association of America (HLAA) is very special. http://www.hearingloss.org has information about chapter locations, typical hearing issues, technology, etc.

It sounds as if you are willing to learn and want to remain in the hearing world. Go for it!

Jump to this post

@julieo4 thank you

REPLY
Please sign in or register to post a reply.