This and That and Talk - My Transplant

@almula, Home Sweet Home ! Those are be beautiful and powerful words, and they are even more meaningful after a transplant. I
wish you a very healthy future. I want to add my Congratulations on receiving your transplant and on your continuing recovery.

@almula, I spent 11 weeks in Rochester, away from my home (800 miles) when I got my transplant. I was excited to get to go home, and I was also apprehensive at the thought of being away from my Rochester medical team. I will always remember the parting words of my care team, "Drive safely and don't forget that we are just a phone call away". I have used the phone and the patient portal on many occasions and I encourage you to do that, too. I hope that you will soon connect with a doctor who will cooperate with Mayo transplant dept.

Remember that Connect is always available. Although you are miles away, you are never alone. Both me and our many members are eager to support you as you adjust to life with your new organ. What can we do to help you and/or your caregiver?

May you continue to experience more blessings in the new year and beyond. God bless.

Hi Rosemary

Christmas Greetings from Scotland! It was kind of you to think of me. As I begin my sixth year post transplant I can honestly say that I have never felt better. Apart from leg cramps sometimes, i have no side effects whatsoever and I live a full and happy life Thanks to all the help and advice I received from fellow Connect members, I have no concerns about the impending changes to my meds as Scotland moves all its transplant patients from Prograf to the generic Adaport. Even more importantly, it will save our Nationalsalth Service hundreds of thousands of pounds which have been ring fenced to go straight back to transplant services.

Wishing you all a very Happy Christmas and health and happiness in the New Year. I add a very special thanks to all those families who have allowed transplants to go ahead after the death of a loved one; we owe you our lives and you have our eternal gratitude.

I don't know what happened to my post a couple of days ago. Oh well let me try again. Ive been doing well except for ongoing viruses that put me in the Hospital in June for 5 weeks. The bug was giving the doctors a run a round causing feavor and low blood counts. They finally found it thru a lung rinse and had the fluid tested. I went thru testing of every part of my body trying to find it. All yhe while having cdif on top of it. What a month but we got it licked so now i get 2 monthy treatments to keep it from coming back. IVIG for the Parvovirus affecting my blood and a Paramentine inhaltion treatment for the lung infection. But my blood counts have come back up to my normal and im working out again. 2.5-3 mile walk and 15 minutes of weights about 5 days a week. Next month is my 2 year anniversary so jan 21 2020 back to Mayo for my yearly checkup. I don't think there will be any thing to worry about. Also to try and help my immune system im only taking Tacrolimus 1.5 and 1 mg per day so they did another biopsy in November and it was negative Praise God. So that's about it for my update. I hope everyone has a Very Merry Christmas and a Happy New year.

Hope you are well and happy. merry Christmas and nappy new year..

@almula, On behalf of all transplant patients, I want to thank you for the happy Holiday message. I feel a real bond to other patients due to my own experience, and I have spoken to others who have shared a similar sentiment.

I don't know if your message was intended to anyone particular member. If you want to address a reply to a particular member you can include their @member and they will get a notification that you have mentioned them.

Here is a link that will provide some guidance. (And while you are in the Transplant Pages, I encourage you to scroll thru the Newsfeed which is updated regularly. You can comment there just like you can in any of the Mayo Connect Discussions)
Pages>About Connect: Who, What & Why>Replies and @mentions: How do I know who is replying to whom?
https://connect.mayoclinic.org/page/about-connect/newsfeed-post/replies-and-mentions-how-do-i-know-who-is-replying-to-whom/
As a volunteer mentor/transplant recipient, I make it my priority to scan messages regularly. I hope you are having a good day.
How long ago did you get the transplant?

@rosemarya Merry Christmas and Happy Holidays to all! Tim is doing well post transplant. His one year checkup in July showed his liver is doing great. Unfortunately, in October he was diagnosed with early onset Alzheimers. He is in the early stages so he is able to be home alone and can still drive.
2020 will bring many changes with this new journey we are on. I am very thankful for our family and friends.
Many blessings to all of you,
JoDee

Had transplant in August. Had my 4 month evaluation. They found Hectic artery stenosis. They went in to put in stent. But artery was kinked. Now they have cut me back open to find the artery and replace with donor artery. Is this common? Seems like I am starting all over. Surgery scheduled for Thursday.

I had four ERCPs to place a stent about 3 months after transplant. Each time I contracted pancreatitis and the pain was horrendous! I had a pain management team to administer pain killers. I was on everything! Set back my recovery by at least 6 months. My transplant was last November. I pray yours goes well the first time.

What are ercp's

Endoscopic retrograde cholangiopancreatography procedures.= a technique that combines the use of endoscopy and fluroscopy to diagnose and treat certain problems of the biliary or pancreatic ductal systems.