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This and That and Talk - My Transplant

Transplants | Last Active: Jun 7 8:31am | Replies (1672)

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@contentandwell

@gaylea1 It can be a long process, but you are making progress. I am sorry your recovery has been so difficult and lengthy. Your energy will be back any day now. I am sure of that. I know I didn't have any real problems after my transplant but it did take a while for the energy to get back up there where I wanted to be. I took naps in the afternoon more often than not.

Don't worry about rejection, as long as you take your immunosuppressants. I often think, what would I do without my smartphone to remind me? They are Godsends when it comes to things like this. It's easier for me now because they switched me to a once a day immunosuppressant so I get up at 6:30 to take them, and return to bed, hoping to get some more sleep in before getting up for real at 7:30. I do that so I can take them without food and take a smaller dose. When I started that I went from four mg to 2.5 mg. It's easier too when traveling to take them without food. When we have visited our son in Denver I just get up at 4:30 their time to take them, and since I don't need to take them with food that works out well for me.
JK

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Replies to "@gaylea1 It can be a long process, but you are making progress. I am sorry your..."

I think now 14 months post i worry less i guess for me that i never even came close to rejecting and after what seems like a dozen biopsy I don't remember how many and they were all negative so when i do remind myself of that. The other thing to is i remember my team told me that even if they saw a rejection it usually only meant they would increase my meds to take care of it.