Mayo seeking volunteers: Chemo-Induced Peripheral Neuropathy study

@colleenyoung Interesting. I finished chemo in 2023, and though I did struggle with the effect, I had no caregiver, had to care for myself.
In short, when pain or tingling happened, I shared with Mayo oncology team and my Mayo cousin. I did a lot of research on tingling, pain, how to best resolve.

I'm reanimating this post for anyone who may have missed it. This study is still recruiting participants dealing with chemo-induce neuropathy should you be interested and be eligible.

Mayo Clinic is seeking volunteers (patient + family caregiver) for a research study on Chemo-Induced Peripheral Neuropathy (CIPN).

The purpose of this study is to assess the impact of a family caregiver massage technique that can help cancer survivors with CIPN. Symptoms of CIPN include: Numbness/pain/tingling in the fingers, toes, hands, or feet.

You may be eligible to participate if you:
- Are 18+ years of age
- Have been treated with certain kinds of chemotherapy for any type of cancer at least 6 months ago
- Have moderate to severe symptoms of CIPN

Participation involves you and a family member (spouse, intimate partner, friend, or other family member) being randomly assigned to one of three groups. Two groups will be assigned to use one of two different massage techniques via an online platform. The third group will receive standard care and is able to participate in the massage program after completing the study. All three groups will provide us with weekly reports and self-reporting of CIPN symptoms.

The functions will be assessed using surveys at enrollment, six weeks, and twelve weeks. Study participation is a total of 12 weeks. You will be compensated for your time spent in this study (up to $240).

No in-person visits are required. Massage techniques are provided online.
You do not need to be an existing Mayo patient to participate.

For more information, contact a member of the study team at (904) 953-5102 or (904) 953-8855.

@colleenyoung
I am interested I have been fighting it for over 2 years

@colleenyoung Yes I would participate.

Starting November 2022 i was diagnosed with Stage 4 Lung Cancer. I had 10 Radiation treatments. 5 Chemotherapy treatments. 3 Keytruda treatments. I been dealing with CIPN for about 2 1/2 years.

I will share this with my husband, but when is the last date to enter this study?

I'm glad your doing good good; so sorry you had to do it alone; God raised up this support group for people who need help and support.

@asolidrock I had support while at Mayo, and recovered from surgery at my cousin’s home in Rochester, however chemo was a different and lonely experience. I was stuck at home for 12 weeks, no visitations. I lived alone so the isolation was worse than covid isolation.
Now I have a tribe that visit, call.