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Evenity is recommendation and concern

Posted by pechu @pechu, Jan 6 7:57pm

Osteoporosis diagnosis after vertebrae fracture. Endocrinologist recommended Evenity. It can be taken for one year, then a follow up drug. I had a heart attack 2 years ago and a significant warning comes with this drug regarding heart attack and stroke potential. That was minimized by the Dr. saying my fracture risk outweighs the study (2) results. The European Union Medical Agency won't prescribe this drug for those with a previous heart attack. My Dexa scores are not in severe range, but a fall fractured a vertebrae, so at 80 I am considered high fracture risk. Has anyone been on Evenity? The anxiety taking it might be worse than any side effects! The decision is mine, just weighing everything. Appreciate this site to just vent concerns.

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tillymack | @tillymack | Jan 6 8:40pm

Have you researched other OP meds? It's my impression that not all have the same risk profile.

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njhornung | @normahorn | Jan 6 8:42pm

I am assuming you have a cardiologist since you had a heart attack. Have you discussed the use of Evenity with him or her?

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pechu | @pechu | Jan 9 12:05pm
In reply to @normahorn "I am assuming you have a cardiologist since you had a heart attack. Have you discussed..." + (show)
Profile picture for njhornung @normahorn

I am assuming you have a cardiologist since you had a heart attack. Have you discussed the use of Evenity with him or her?

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@normahorn Yes to contact with Cardiologist. I'm waiting for response to my inquiry in Portal. I have researched other OP meds. Three options I would consider: Tymolos, FOrteo, Prolia. All have side effects that are also of concern and having to take drugs the rest of my life. Weighing: potential fractures with drug therapy and the hopeful healing of said fracture(s) without. What a difficult decision we all make.

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babs10 | @babs10 | Jan 10 12:59pm

I'm no expert for certain, but since you've had a heart attack and there's that cardiovascular warning with Evenity, I'd go with Tymlos or Forteo. Why risk it?

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bobcinem | @bobcinem | Jun 8 7:16am

I’m sorry for what you are going through! I had a heart attack last week, and my rheumatologist immediately called and said I would not get Evenity again. I will be meeting with her tomorrow.
I have started researching the drug but I haven’t found evidence that confirms or denies the possibility that the medication had any side effect that may have contributed to my heart attack.
I have no family history, and I had no risk factors.
Very strange…
I’m 75 years old, petite, and have EDS… I have no idea what these things might be relevant, but I’m determined to find out.
Keep me posted!
😘

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