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Allodynia: Anyone else sensitive to touch?

Neuropathy | Last Active: Jan 9 10:40pm | Replies (174)
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Profile picture for dckuke @dckuke

Despite checking in, I did know of their program. I have polyneuropathy, plantar fasciitis and arthritis in every joint—almost zero feeling many areas of feet and ankles—which are deteriorating quickly. I know I will have a pain problem. Biggest issues are when Lyrica hit half life—then 2.5+mg micro dose thc. So, I know absolutely that I will need help with pain and maybe insomnia. What program do they have? Thanks for your interest

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Replies to "Despite checking in, I did know of their program. I have polyneuropathy, plantar fasciitis and arthritis..."
Rachel, Volunteer Mentor | @rwinney | Jan 9 9:17am

@dckuke Mayo Clinic has 3 pain rehabilitation centers which focus on placing more control on the person versus doctors and the medical universe. It's about learning tools for management which is all encompassing - behavioral, physical, emotional and chemical. For instance, I dealt with allodynia which for me was heightened from central sensitization syndrome and some medications. In rehab, I learned to calm down my central nervous system and start removing fuel lines from the fire. It's about a lifestyle change, and learning and applying tools for future management.

Here's info about the PRC:
https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691
The program is not for everyone, but it doesn't hurt to dive in to learning about its teachings. Some folks who did not go we're still able to take away new thoughts and ideas about pain management. It is a comprehensive, multifaceted approach.

Outside of medication, what tools do you use presently to help manage symptoms?

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