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Anybody else have Factor V Leiden?
Blood Cancers & Disorders | Last Active: 4 days ago | Replies (73)Comment receiving replies
@lizkc56
Hi Liz,
I have both Factor II and Factor V Leiden. The main precautions include avoiding estrogen (such as in birth control or hormone replacement therapy), tobacco use, and prolonged immobility. It's also important to follow a heart-healthy diet by limiting saturated fats, staying well-hydrated, and being mindful of vitamin K intake—especially K2 and leafy greens—if you're taking warfarin.
You should also be cautious with the use of ibuprofen (a type of NSAID), as it can affect platelet function and increase the risk of bleeding—especially at higher doses or with prolonged use.
You might want to speak with your doctor about regular ultrasounds to monitor for blood clots, as well as any specific dietary guidance.
Also, your daughters should see a hematologist and request a complete von Willebrand Factor (VWF) test.
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@swalex Thank you for sharing this info. I've only recently found out that my grandfather and my father have this disorder. My father was recently hospitalized with both PEs and DVTs. Although this isn't the first time, this was the first time that he was treated based on the disorder. We found out that my (deceased) grandfather had it this past Nov (25) based on testing that my aunt did. My father is 82. I have concerns for myself as a woman seeing that estrogen increases risks. Also because I have two daughters and my husband also has European ancestry (although I don't know where from. Mine is German)