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This and That and Talk - My Transplant

Transplants | Last Active: Aug 14 9:57pm | Replies (1677)

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@cmael

Hi Rosemary, yes I remember meeting you at Rochester Mayo. It was so nice to talk, even though I was called for labs too soon. The picture was taken a yr ago when we were in Finland, visiting my brother. Re: my hair, I have bought Biotin, but need to ask if it’s ok to take it. After looking up Prograf and hair loss, it wasn’t clear if it would be permanent or not. It’s nice to hear some feedback.
Other than hair loss and arthritis, I’m doing very well and am very thankful. My husband has dementia and I’m hoping the stress won’t affect my health. So far it’s pretty manageable.

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Replies to "Hi Rosemary, yes I remember meeting you at Rochester Mayo. It was so nice to talk,..."

I am always on the look-out for the green transplant satchels that organ recipients carry with them. We kind of stand out in the crowded waiting room for our morning labs. I find that there are some patients who are also on an appointment schedule similar to mine, and often cross paths throughout the day.

You are not alone in your situation with your husband's condition. There is a Caregivers Discussion Group on Connect for you when you want to meet others. https://connect.mayoclinic.org/group/caregivers/

I want to add this to my original reply about hair loss.
In addition to my hair thinning and falling out, my main concern after transplant was my fingernails. They were growing oddly, they were discolored, and they were in the process of regrowing new ones to replace the old ones and there was a raggedy ugly ridge where they met. When the fingernails were regrown completely, I stopped taking the biotin.