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This and That and Talk - My Transplant

Transplants | Last Active: Jun 7 8:31am | Replies (1672)

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@cmael

My transplant date was 4/5/18 and I’m feeling very good and am very grateful. Before my transplant I had 13% function and thought I wasn’t sick enough to need a transplant. Of course, I can see how I’m feeling much better now. My concern is that I’ve lost so much hair. I’ve always had thick hair. Has anyone else dealt with this?

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Replies to "My transplant date was 4/5/18 and I’m feeling very good and am very grateful. Before my..."

@cmael Congrats on your transplant! I have not had mine yet but the people I follow on Instagram have had the issue with losing hair (some have even lost their hair or cut it to donate). I couldn't tell you all the remedies they have suggested except biotin (ask your nephrologist first if you take this as a supplement). I do know that it is temporary. I don't know if that is because meds change and decrease over time or the body adjusts but those who have discussed it have all had transplants within the past year. It looks great in the photo!

I had a heart/liver transplant on July 4, 2017. I lost almost all of my hair. Like you, I have always had plenty of hair so it was quite a shock. My hair started slowly making a comeback about 4-5 months post transplant. Now I am a little over a year out and I have a full head of hair again and ironically it's darker (my friends suspect I am dying my hair). My poor brother has been bald headed for years and I have joked with him in the past (not now) that I would trade my hair for his heart!!! Anyway, your hair will come back and maybe even better. Good luck, be patient and hang in there.

Hi, @cmael ! It's Rosemary. You look amazing! We sat across from each other in the Rochester Mayo waiting room waiting for our labs to be drawn. Do you remember?
That is a beautiful outdoor setting that you and your husband are enjoying

After my transplant (liver/kidney) my hair also thinned. One of my doctors told me I could take Biotin 2.5 - 1X daily. It is over the counter. I think it was the dermatologist at my 4 month checkup and my team approved it for me. I also used a mild shampoo and conditioner.

You might contact your nurse coordinator if you don't have an appointment soon. Hugs.

@cmael very nice picture! I know the feeling well of not knowing if you want a transplant. I was ambivalent also until the end when I got really sick and gained so much weight from fluid retention.

Regarding the hair loss, I had a problem with that too and asked the NP on my transplant team. She said to try biotin, that helps with many people and it did with me. The only downside I have heard about it is that it can cause inaccurate results on the TSH test for thyroid so my endocrinologist told me to stop taking it a couple of days before that test He said it does not cause a thyroid problem, just test inaccuracy. So check this with your transplant team to see if they will approve it for you.
JK

@cmael, I lost a bunch of hair after my transplant, too! I think by the end of the first year post, it was back to normal. Quite a shock when you’re used to having it thinned out a bit because you have so much hair! I celebrated 7 years yesterday and coincidentally I had a hair cut scheduled with a new hairdresser. She remarked how thick and full my hair was! I’m pretty sure yours will come back too.