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This and That and Talk - My Transplant
Transplants | Last Active: Aug 14 9:57pm | Replies (1677)Comment receiving replies
@rosemarya I had a kidney TPX at Mayo in Rochester, MN too. 8/16/18. My sister was my live donor. Such a blessing. Feeling better overall but still have a lot of pain in my joints and muscles. Pretty sure its the meds, they are still adjusting the levels. I also get my labs done by my local dr. I'm going back for my 4 mo check up and biopsy in mid December. A little nervous about the biopsy. Had one a few years ago and it did not go well. Loved Mayo!
Replies to "@rosemarya I had a kidney TPX at Mayo in Rochester, MN too. 8/16/18. My sister was..."
Wendydvb,
Congratulations on your transplant, and hugs to your amazing sister for giving you one of her kidneys.
I had a deceased donor for my liver and kidney in 2009, and I have been blessed with 9+ years of healthy living.
I remember that the pain gradually faded away after my transplant and I knew right away if I was overdoing it. I think that it took nearly 9 months until I felt completely normal. We are all different though, so don't let my time frame frighten you. I have to add that I was able to go hiking at 5 months after my transplant, although my distance and stamina not back to normal yet.
I never had a kidney biopsy prior to my transplant because my kidney failure came on suddenly due to my liver disease. Your upcoming biopsy should be a whole lot easier because of the location of the transplanted kidney. It is easier to get to for the biopsy samples.
Here are several discussions that might appeal to you as you continue your recovery.
-Still tired post kidney transplant
https://connect.mayoclinic.org/discussion/still-tired/
-What to Expect: Post Transplant Care
https://connect.mayoclinic.org/page/transplant/newsfeed/what-to-expect-annual-post-transplant-follow-up/
-Self-Care Tips for Transplant Patients
https://connect.mayoclinic.org/page/transplant/newsfeed/self-care-tips-for-transplant-patients/
You will find: -Hand Washing 101
-Getting Ready for Flu Season: Should I Get Vaccinated?
-Weight Gain After Transplant: Where Does it Come From and How to Get Rid of It
-There’s a list of “transplant hacks” developed by the experts themselves, patients from our transplant discussion group.
@wendydvb, I invite you to join into any of the discussion groups on Mayo Connect. I look forward to hearing from you.
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@wendydvb Congratulations on your transplant and how wonderful your sister was able to donate to you! What kind of a protocol you are on, is it non steroidal? Meaning no Prednisone as a medication. That is what my husband's transplant team used for the longest time and that is why they had to biopsy his new kidney. He has been on prednisone 2.5 mg once a day for the last several months due to low white blood count, but they will be titrating him off of that in the next few months. I think that muscle soreness and discomfort can be a normal sign due to your body getting used to activity again and the introduction of medications.
Ginger