Is anyone using a teledoc neurologist?
We have a neurologist and he diagnosed my husband with early Alzheimer's in September. Our next appointment is in February and I need to change it due to his cataract surgery. I would also like a prescription for sundowning which has gotten much worse in this last month. No one in his office picks up calls and it is near impossible to get a return call. This is a problem that several of his patients have complained about. I am wondering if anyone has used a doctor on teledoc. I am losing patience with this practice and we need to have a neurologist who can be contacted when needed. We have the test results and the diagnosis so I am thinking that teledoc would work for regular appointments to monitor progression.
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Hello, we have a shortage of Neurologists in our state (Oregon), so we are waiting in a nearly year-long line just to get a virtual appointment to meet with a Neurologist online.
I fear that the meds his primary put him on are not a good fit (second try), and waiting this long to see an expert I fear we are losing precious time and subjecting him to meds that are not helping and may be harming. Very frustrating!
Hugs to you and Happy New Year.
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4 ReactionsConsider enrolling in a clinical trial. Look at these sites:
https://www.mayo.edu/research/clinical-trials/search-results
https://www.alzheimers.gov/clinical-trials/find-clinical-trials
Participating in trials, such as observational or drug trials, can give you access to the best neurology staff in the country. Some studies are eager for enrollees.
Even if the study is not nearby, you may be able to travel to a study location just once a year—or every few months so—to participate. It is worth it, and you will be helping people coming after you, including family members who may or may not be predisposed to Alzheimer’s.
My husband and I participate in several studies at the same place. And when we have needs or questions, including medication changes, we contact them through MyChart and always hear back. And we have had virtual appointments with neurologists involved. We are blessed.
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6 ReactionsThank you! I will look into that. I am in the same boat as Judi. A shortage of neurologists in my part of NJ. I can go to Philly or NYC but my husband is a very difficult traveler when it comes to these big cities.
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4 ReactionsHis PCP may be willing to write a script for the sundowning. That might at least hold you over til you see a neurologist. Since you already have a diagnosis and neurologist are in short supply, you might try a geriatrician. They are generally very good at managing the symptoms of dementia. And they are very good at managing multiple chronic conditions and can address end of life preferences when that becomes an issue. They tend to focus on function and quality of life issues
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7 ReactionsSome things still have the ability to make me happy. I am so very happy my neurologist allows phone visits. My little girl doesn't think anything is wrong and won't go ( or wait in waiting room) to doctors.
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5 ReactionsI stopped my husband's sundowning by giving him 10 mg of melatonin at 4 pm and another 10 mg at 9 pm. The only time he sundowned again was when my son forgot to give him the firt dose until 6 pm. It had gotten so bad that he had wandered off on our 22 acres in the middle of the night and was found face down in the dirt with hypothemia.
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6 ReactionsExcellent information. TY.
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1 Reaction@raebaby That is very good information. Did the 4pm dose make him sleepy? And can you tell me which brand you used? I am also considering CBD but I think I would try melatonin first.
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2 ReactionsI think most any brand of melatonin worked. I told another Mayo cliic member about it and it helped her husband too. I don't remember the 4 pm dose making him sleepy. He was a terrible sleeper. Up and down all the time. But with the dosage i told you about, he no longer went out of the house in the mddle of the night.
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5 ReactionsWow, that's excellent. Glad you are happier and tried that route. All the best. @nelms
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