Dealing with a Spouse with a “Mild Cognitive Impairment”

Posted by tryingtimes10 @tryingtimes10, Dec 31, 2024

My husband was diagnosed with MCI in 2019. He is pretty independent, just forgetful of time, dates, location of places, anything electronic & events from our life together (we’ve been married 52 years). It’s all just getting to me. I find myself wanting to be alone so I’m not continuously reminded of these changes. Because my friends/family are out of state, working, or involved with their own families, I really have no one to talk to so I’m seeing a therapist twice a week to deal with the sadness, anger, grief I have over his condition. I just wonder if other women find themselves in this position & how they are dealing with it.

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Profile picture for upgirl2013 @upgirl2013

@joannahoward I totally understand. For a while there I was making an apple pie twice a week. Must be something his mother made. My husband would rather have a grilled cheese sandwich, Mac n cheese, (homemade) or a hamburger for dinner. He does cook his own hamburger. My husband put ketchup on chicken and rice casserole. I am trying not to get irritated, but the weather is keeping me home bound that goal is hard to achieve.
This disease is horrible because one moment he seems fine and the next he is all out of whack.

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@upgirl2013 You are so right about the inconsistencies in his thinking. My husband remembers complicated things that he learned 50 years ago, but can't tell me what he thinks of something that he recently has seen. It is disconcerting to drive with him and he can't remember a street a couple of blocks away or remember where he parked the car. He doesn't talk to me. He was always very introverted, but now I don't know if it's his introversion, or depression or brain fog. I don't understand why he sits all day and reads the paper when he doesn't remember anything. I feel very lonely.

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Profile picture for joannahoward @joannahoward

@upgirl2013
Yes, I think so too. It's hard for me to relate because I don't feel at all nostalgic. In fact I find it irritating. I guess it's because I'm thinking a lot about things that I haven't done and I still want to. What also bothers me is that he seems to feel nostalgia about situations which I don't think are worth feeling nostalgic about. For example, this morning he pined for a dish that I have made which is not at all extraordinary and preferred it to something new that I was going to make. For some reason this bugged me!

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@joannahoward I agree. Some ppl are just not that sentimental. I'm not, but my dad is super sentimental and we (adult children) believe he may be thinking he hears my mom respond when she doesn't and doesn't acknowledge that sometimes he is actually filling in the blanks and /or guessing what she would say, so he thinks she's better than she is... I can understand she maybe senses mood, but I'm not even sure about that, really. She doesn't like yelling or nasty voices so she's not sensing it - she probably is just hearing it. Alas, he is still determined that she's absorbing certain knowledge & emotions. Maybe she is, but last night she kicked him while he was trying to help with her PJs - she often sleeps in her clothes anyway. She also pooped in the shower not the toilet which was also right there. It's just such weird disease it's hard to know 99% of the time what's really happwning.

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Profile picture for judimahoney @judimahoney

@minniem
Hello, and first off so very sorry about your accident. I hope you are not injured or sore.
I am responding because of your hugging comment. My husband's brother died in July, no tears from him and hardly a reaction. I asked him if he wanted a hug after we found out, and he said no. I guess I needed a hug after losing my Bro in law, but there is no hugging or touching anymore and I too long for his comforting arms around me. That lack of intimacy is one of the worst parts of dementia.
Happy New Year anyway.

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@judimahoney - we are fine from the wreck and thank you for asking. It is comforting to know that not wanting a hug can be a part of this horrible disease therefore I will not take it personally. I feel badly that you are experiencing the same.
You share a lot of worldly wisdom and I thank you.

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Profile picture for upgirl2013 @upgirl2013

@judimahoney my husband’s request for nightly dessert makes sense now.

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@upgirl2013
Luckily I love to bake but also need to hold back so neither of us gains too much weight. 🤭

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My husband also has MCI. He has been stable but lately he has been paranoid- accusing me of things I do not do. He is also not keeping his dates straight such as wanting me to cancel services because he thinks it interferes with a luncheon date he has that day when in reality it is a month away. He just is mean sometimes.

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Profile picture for minniem @minniem

@judimahoney - we are fine from the wreck and thank you for asking. It is comforting to know that not wanting a hug can be a part of this horrible disease therefore I will not take it personally. I feel badly that you are experiencing the same.
You share a lot of worldly wisdom and I thank you.

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@minniem
I learn a lot from this blog, and from numerous classes I am taking.
Thanks. 🙂

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Profile picture for judimahoney @judimahoney

@blc1951
Yes, I just took a dementia class and they mentioned that the senses are affected. One of the last senses to remain intact is the taste of sugar. My husband has developed quite the sweet tooth since his diagnosis, and he wasn't that into sweets before. Now I have to limit or hide the sweets in the house.

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@judimahoney

This immensely helpful information! I’ve thought as my husband has become increasingly stubborn about not eating green vegetables and insisting on having a muffin every morning. He bootlegs dessert stuff when he’s out, and I’m not around.
Perhaps his mother’s hiding sweets around the house and later taking sweets from others in her care facility was not because of diabetes, but she since she had dementia, too, it was a side effect of that?

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