Dealing with a Spouse with a “Mild Cognitive Impairment”

Posted by tryingtimes10 @tryingtimes10, Dec 31, 2024

My husband was diagnosed with MCI in 2019. He is pretty independent, just forgetful of time, dates, location of places, anything electronic & events from our life together (we’ve been married 52 years). It’s all just getting to me. I find myself wanting to be alone so I’m not continuously reminded of these changes. Because my friends/family are out of state, working, or involved with their own families, I really have no one to talk to so I’m seeing a therapist twice a week to deal with the sadness, anger, grief I have over his condition. I just wonder if other women find themselves in this position & how they are dealing with it.

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Profile picture for gilkesl @gilkesl

@dederickve You are now in charge, not him. You must take care of yourself so that you can be there for him. You can do this.

His behavior is going backward in time and is similar to that of a toddler. The toddler doesn't want a babysitter, but prefers to cling to mom and make her life miserable all day everyday. No one can do 24/7 care. For your health, you need a break.

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@gilkesl I think airplane stewardesses have the best advice. When they tell you ehat tondo when the face masks cone down, the say to put YOUR OWN mask on FIRST, brcause if YOU pass out, there's no one to help the others. So care takers need to take care of themselves, because otherwise their Carees have no one to take carr of them.

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Profile picture for upgirl2013 @upgirl2013

@joannahoward I totally understand. For a while there I was making an apple pie twice a week. Must be something his mother made. My husband would rather have a grilled cheese sandwich, Mac n cheese, (homemade) or a hamburger for dinner. He does cook his own hamburger. My husband put ketchup on chicken and rice casserole. I am trying not to get irritated, but the weather is keeping me home bound that goal is hard to achieve.
This disease is horrible because one moment he seems fine and the next he is all out of whack.

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@upgirl2013

This is a horrible disease. I am currently shut away in our closet trying not to hear his phone conversation with a friend.
We were in a car accident recently and he is calling all his friends to tell them about it, but he has to start with why we were in the car- where we were going, why, etc. It takes a few minutes to get to the point.

After the wreck I was very shaken and upset. I asked him for a hug- which we rarely do anymore - and he said he did not feel like hugging anybody.

It is so sad and I feel so lonely. Bereft is a good word. My friends help with texts of support but they cannot give me what i really yearn for and need. My husband’s arms around me.

I am trying to stay busy so I cannot think- just buckle up and keep moving- and praying. Jesus is going to hear from me a lot today.

To my friends in this group and in the same boat- I wish you a blessed new year. May 2026 be brighter for you - in whatever way possible.

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Do tastes change? My husband has always loved salt, and salts his food before even tasting it. All of a sudden, he is starting to complain that foods are too salty.

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Profile picture for minniem @minniem

@upgirl2013

This is a horrible disease. I am currently shut away in our closet trying not to hear his phone conversation with a friend.
We were in a car accident recently and he is calling all his friends to tell them about it, but he has to start with why we were in the car- where we were going, why, etc. It takes a few minutes to get to the point.

After the wreck I was very shaken and upset. I asked him for a hug- which we rarely do anymore - and he said he did not feel like hugging anybody.

It is so sad and I feel so lonely. Bereft is a good word. My friends help with texts of support but they cannot give me what i really yearn for and need. My husband’s arms around me.

I am trying to stay busy so I cannot think- just buckle up and keep moving- and praying. Jesus is going to hear from me a lot today.

To my friends in this group and in the same boat- I wish you a blessed new year. May 2026 be brighter for you - in whatever way possible.

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@minniem I am so sorry that you have that horrible lonely feeling. I hate those moments. “It’s by hard the hardest thing I have ever felt: To be so in love with you, yet so alone” Mary Travers

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Profile picture for blc1951 @blc1951

Do tastes change? My husband has always loved salt, and salts his food before even tasting it. All of a sudden, he is starting to complain that foods are too salty.

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@blc1951 - I believe they do. Or maybe the brain is not receiving the same signals from the taste buds. For my spouse - it is hamburgers and casseroles - and unfortunately- fish sticks.

Of course, I still love Little Debbie Christmas Trees, so I have my nostalgia foods, too.

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Profile picture for minniem @minniem

@upgirl2013

This is a horrible disease. I am currently shut away in our closet trying not to hear his phone conversation with a friend.
We were in a car accident recently and he is calling all his friends to tell them about it, but he has to start with why we were in the car- where we were going, why, etc. It takes a few minutes to get to the point.

After the wreck I was very shaken and upset. I asked him for a hug- which we rarely do anymore - and he said he did not feel like hugging anybody.

It is so sad and I feel so lonely. Bereft is a good word. My friends help with texts of support but they cannot give me what i really yearn for and need. My husband’s arms around me.

I am trying to stay busy so I cannot think- just buckle up and keep moving- and praying. Jesus is going to hear from me a lot today.

To my friends in this group and in the same boat- I wish you a blessed new year. May 2026 be brighter for you - in whatever way possible.

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@minniem
Hello, and first off so very sorry about your accident. I hope you are not injured or sore.
I am responding because of your hugging comment. My husband's brother died in July, no tears from him and hardly a reaction. I asked him if he wanted a hug after we found out, and he said no. I guess I needed a hug after losing my Bro in law, but there is no hugging or touching anymore and I too long for his comforting arms around me. That lack of intimacy is one of the worst parts of dementia.
Happy New Year anyway.

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Profile picture for blc1951 @blc1951

Do tastes change? My husband has always loved salt, and salts his food before even tasting it. All of a sudden, he is starting to complain that foods are too salty.

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@blc1951
Yes, I just took a dementia class and they mentioned that the senses are affected. One of the last senses to remain intact is the taste of sugar. My husband has developed quite the sweet tooth since his diagnosis, and he wasn't that into sweets before. Now I have to limit or hide the sweets in the house.

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Profile picture for upgirl2013 @upgirl2013

@minniem I am so sorry that you have that horrible lonely feeling. I hate those moments. “It’s by hard the hardest thing I have ever felt: To be so in love with you, yet so alone” Mary Travers

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@upgirl2013
Such a lovely John Denver song. 😊

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Profile picture for blc1951 @blc1951

Do tastes change? My husband has always loved salt, and salts his food before even tasting it. All of a sudden, he is starting to complain that foods are too salty.

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@blc1951 Your post made me realize that when my husband one day said he would not eat green beans, it’s probably because of his dementia. He’s in great good humor as always, but oddities are popping up more frequently. Apparently tastes do change. Thanks for posting.

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Profile picture for judimahoney @judimahoney

@blc1951
Yes, I just took a dementia class and they mentioned that the senses are affected. One of the last senses to remain intact is the taste of sugar. My husband has developed quite the sweet tooth since his diagnosis, and he wasn't that into sweets before. Now I have to limit or hide the sweets in the house.

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@judimahoney my husband’s request for nightly dessert makes sense now.

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