1. < MAC & Bronchiectasis
Profile picture for helen1000

Exercise for BE/NTM patients

Posted by helen1000 @helen1000, 1 day ago

I am not a fun for exercise in my whole life. If I exercise in a high intensity way for two weeks, I will get a cold for sure.

I quit jogging after I got MAC, as I am not sure jogging is the best way to exercise with lung disease like BE/ active infection as it may cause bleeding.

However after I did 50 push ups on Monday , I found I have a little bit sputum with brown color, not sure whether it is a bleeding caused by push ups. Does anyone share the same experience ever? Does it mean I still have ongoing infection/ inflammation in my lungs? I thought I can exercise in a more intensive way when my cavity is closed, but it seems I should not be such optimistic.

Walking is great but it is not strength exercise. Swimming is impossible for BE patients too. It is important to control the amount/intensity, which is my lesson.

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

Profile picture for lvnl
lvnl | @lvnl | 11 hours ago

So interesting. Thanks Helen.

REPLY
Profile picture for blm1007blm1007
blm1007blm1007 | @blm1007blm1007 | 2 hours ago
In reply to @helen1000 "@lvnl I found a paper from a top Chinese hospital that CF is a spectrum, depending..." + (show)
Profile picture for helen1000 @helen1000

@lvnl I found a paper from a top Chinese hospital that CF is a spectrum, depending on what genetic mutation ( variance) the patients have, and also Asian has different mutation from Caucasian in CF. Asian CF has less symptoms than Caucasian CF, mostly showing as frequent BE infections and/or frequent sinus infections. That makes me feel BE may be another form of CF, but in a less severe form. My genetic test shows I am a carrier and my sweat test shows negative. But if I develop another mutation, I will show more CF symptoms. Of course many healthy adults are also a carrier. That means if both parents carry such a type of mutation, the child will be a CF. If only one parent carries it, the children will not develop CF, maybe just BE. In one word, BE and CF are in the same family. That is why NTM is so recurrent because patients have the genetic defects.

I am not a doctor. I just do some research and find this correlation. Please correct me.

Jump to this post

@helen1000 Dr. Ann O'Donnell Pulmonologist at the Georgetown facility suggests wearing a backpack with weight when walking to get us to a point in our breathing that will help us bring the mucus up .....to come up. I wonder if this would be something that might help you in your challenge.
Barbara

REPLY
1 reply
Profile picture for helen1000
helen1000 | @helen1000 | 8 minutes ago
In reply to @blm1007blm1007 "@helen1000 Dr. Ann O'Donnell Pulmonologist at the Georgetown facility suggests wearing a backpack with weight when..." + (show)
Profile picture for blm1007blm1007 @blm1007blm1007

@helen1000 Dr. Ann O'Donnell Pulmonologist at the Georgetown facility suggests wearing a backpack with weight when walking to get us to a point in our breathing that will help us bring the mucus up .....to come up. I wonder if this would be something that might help you in your challenge.
Barbara

Jump to this post

@blm1007blm1007 It is such a nice suggestion - I will definitely do it! Happy New Year! I wish 2026 is a better year for all of us!

REPLY
View MoreView Less
Please sign in or register to post a reply.