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Cryoglobulinemia: What medications do they give?
Blood Cancers & Disorders | Last Active: Jan 12 7:59am | Replies (4)Comment receiving replies
Cryoglobulinemia. I have had hepatitis C in the past but was given the Mavyret medication and it cleared it. But supposedly could be coming back. And need to see a kidney doctor. So I go back in like 3 weeks and pray it’s not anything (a mistake), he said it is a very rare disease and has 3 stages. They have done blood work and blood work cause at first thought I had rheumatoid arthritis. So I’m not sure. I sometimes don’t even want to go back to doctors. I recently lost my son who had just turned 30 so the year has been bad all the way around. I’m scared, angry and mad. But thank you for your response.
Replies to "Cryoglobulinemia. I have had hepatitis C in the past but was given the Mavyret medication and..."
Good morning, @chicago13 I just wanted to check in with you today to see how you’re doing. Were you able to read through some of the information I posted about cryoglobulinemia and connect with other members? Here is a link to my reply from a few weeks ago. https://connect.mayoclinic.org/comment/1471382/
I think you have a doctor appointment coming up soon. Will you let me know what you find out please?
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@chicago13, I’m so sorry to read about the recent loss of your son. How unimaginably devastating this has to be and I can’t help but wonder if your current health issues aren’t related. My heart goes out to you with all the sadness, anger, fear and stress you’re experiencing right now.
One of the special things about Connect is that we’re very supportive here. Sometimes it can be helpful to speak with members who are coping with a similar diagnosis. We do have members with cryoglobulinemia. So I want to connect you with those members first.
Here is one of many discussions about cryoglobulinemia.
~Cryoglobulinemia: Want to connect
https://connect.mayoclinic.org/discussion/cryoglobenemia/
Others were found in this search:
https://connect.mayoclinic.org/search/
A little more information for you:
From Mayo Clinic:
https://connect.mayoclinic.org/discussion/cryoglobenemia/
From Cleveland Clinic: https://my.clevelandclinic.org/health/diseases/13204-cryoglobulinemia
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Since this is such an emotional loss for you, at the same time as your own health issues, you might find some comfort with joining our Grief Support Group. I know it can’t replace your son but being able to share your story, his story and talk to others who have experienced a significant loss can help you process these emotions and find some footing when you feel lost.
One such conversation is this one:
I am trying to deal with the loss of our only child. https://connect.mayoclinic.org/discussion/i-am-trying-to-deal-with-the-loss-of-our-only-child-richard/
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This is a link to our Loss &Grief support group: https://connect.mayoclinic.org/group/loss-grief/
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I encourage you to follow through with your doctor, with the consultation to find out for certain what the diagnosis is. There are varying treatments for Cryoglobulinemia depending on the type. What type of specialist are you working with?