Ostomy: Adapting to life after colostomy, ileostomy or urostomy

It takes time to become comfortable with an ostomy — a surgically created opening in your abdomen that allows waste or urine to leave your body.

Many questions may run through your mind as you practice good ostomy care and live your life. It can help to talk to others who have been there. Perhaps you'd like to ask others questions like: What can I eat? What about leaks? Can I go back to work after colostomy? Can I ride a bike with an ileostomy? Will everyone figure out I've had urostomy surgery just by looking at me? What about intimacy?

Welcome ostomates. Let's talk frankly about living with an ostomy. Why not start by introducing yourself? What type of ostomy do you have? How's it going?

Interested in more discussions like this? Go to the Ostomy & J-Pouch Support Group.

Profile picture for fos @foss

I have had mine coming up 8 years now. I wear a ostomy pouch during the day and hook up to a overnight bag for bedtime. It holds 2 Ltr of Urine enough to last all night so you dont have to get up.
Within a couple of days I had no trouble changing it myself
As far as a brand I tried them all. They will send you free samples to try. I finally settled on Coloplast products and have been using them for years.
I have some little tricks I invented and would be glad to share them with you if you like. It makes it easier.
I go once a year to Sunnybrook hospital for a cancer scan and have been cancer free each time. Wearing a bag is better than the alternative. Hope this helps. Good luck…Foss

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@foss I would love to hear your invented tricks. Please share if you want as it might help others in similar situations. I had a urostomy almost 4 years ago and have had a lot of issues with skin irritation. I too decided on the coloplast products.

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# 1 when changing bag the important thing is to make sure you use barrier cream, I wash around stoma and use a hair dryer to make sure it’s bone dry then a thin layer of barrier cream wipe of access . Use dryer again till dry make sure it’s dry or you will get embarrassing leakage .
#2 when showering I use Saran Wrap enough to cover bag and use adhesive tape to tape top of bag. Have also used plastic bags and taped them at top also.
Hope these little tricks help you
Good luck …Foss

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Profile picture for fos @foss

# 1 when changing bag the important thing is to make sure you use barrier cream, I wash around stoma and use a hair dryer to make sure it’s bone dry then a thin layer of barrier cream wipe of access . Use dryer again till dry make sure it’s dry or you will get embarrassing leakage .
#2 when showering I use Saran Wrap enough to cover bag and use adhesive tape to tape top of bag. Have also used plastic bags and taped them at top also.
Hope these little tricks help you
Good luck …Foss

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Forgot to mention I use protection ring after barrier cream before putting on pouch. I use only Coloplast products. To me they are the best. Foss

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In response to the post about showering...I simply take the pouch off when showering. It's never been a problem. I seldom shower before I've basically finished pooping for the day. Hey! I'm old (84) and retired.

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I have a stoma for urine removal i use a 2 piece coloplast ostomy bag with protective ring , barrier cream and ostomy belt. Been using same system for years with very little problems although I do have the occasional leak.
I usually change it every 4 days. Drain it often. Hope this helps. Foss

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@piki The self (husband)-cathing ended almost two years ago and I was given a urethral catheter. Then by accident (!) I learned of the suprapubic catheter which my NEW )March 2005) urologist gave me in April 2005...if I seem a tad bitter, well I am...I was basically hung out to dry by urologist #1... But then we could trade similar stories forever...

So now I have no liquid restrictions at all.

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I don't use any barrier cream mainly because I wasn't shown that possibility. I do use Skin Tac to keep the barrier/flange/wafer securely on and then on top of the edges Hollister's extenders. They are three pieces but easier to place on and wider than Coloplast's 2 pieces. I am a dedicated Coloplast old lady.

For anyone with a navel or other crater type problem...here's my solution. My surgeon put my stoma right beside my very deep navel and I started out using stick paste to fill it in and make it smooth and level. Ugh. Not fun. Messy. Hard to do. Unpleasant to have to clean all that paste out again. I happened to have in my stash of 'stuff I have no idea where it came from' some Convatec Duoderm Extra Thin Hydrocolloid Dressing 6" x 6". So I made a little cardboard template of a piece to cover said navel and cut it out of the Duoderm sheet. I can get 8 pieces out of one sheet. Voila! Problem neatly solved.

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Profile picture for fos @foss

# 1 when changing bag the important thing is to make sure you use barrier cream, I wash around stoma and use a hair dryer to make sure it’s bone dry then a thin layer of barrier cream wipe of access . Use dryer again till dry make sure it’s dry or you will get embarrassing leakage .
#2 when showering I use Saran Wrap enough to cover bag and use adhesive tape to tape top of bag. Have also used plastic bags and taped them at top also.
Hope these little tricks help you
Good luck …Foss

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@foss I use Hollister bags and they stay on while showering. Never had a problem. no more saran wrap.

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Profile picture for piki @piki

In response to the post about showering...I simply take the pouch off when showering. It's never been a problem. I seldom shower before I've basically finished pooping for the day. Hey! I'm old (84) and retired.

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I agree I also take my bag off when showering or soaking in a nice hot tub with no problems When at home I use skin tac I only use barrier strips when I go out I have found out the less I use the better off I am. I use a Coloplast Mio Flex one piece disposable bag so I change my entire bag 3 to 4 times a day and have my routine down to 5 mins I am 86 with bad arthritis in my hand and this system works best for me. I dont have to worry about cleaning a bag or bacteria building up in it. Everyone has to find what works best for them. Since this is my life now I try to make it as simple as possiblee

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