Rosemary, thanks again. I am going to save my questions for next week. 🙂

@davebarnes Dave, you are probably type O if it is common. You are smart to stay in AZ, in CA transplants take place at a higher MELD. I believe all of the Mayo centers are top rate too.
Things will get better when you have the support of your wife, it sounds like she is very understanding about all of this. That can be really important. My husband was very good through all of this, sometimes too good not wanting me to do anything and I am the type of person who really likes to have her independence. It took awhile after transplant for him to back off but better that than not being helpful at all.
Once your wife arrives do try to get exercise. Really, the more you able to do the better off you will be. I am sure that is why my recovery went so well, despite the fact that in the last six weeks I was miserable and did almost nothing except eat and nap. If you can get exercise you will be so happy that you did after the transplant because it will make recovery much easier.
JK

Thank you for your kind words. I am headed to Mayo ER for what I am sure will be a paracentesis. Have a great day

@davebarnes I am trusting that you will get some relief at the ER. As you feel comfortable doing so, keep us posted. Teresa

@davebarnes, I'm sending prayers from Kentucky. Rosemary

Thank you. In ER about to get CT scan for paracentis I hope

@davidgenebarnes, You are in a good place to receive a diagnosis and treatment. One of the realities that many of us experience is that visits to the ER become a routine. I am sorry for this unplanned visit for you; I am happy that you are getting checked out.
I sometimes wonder if I had been treated by Mayo when I was first listed for a liver transplant, that maybe some of my complications could have been avoided. I try not to dwell on that, though.

Prayers do work. I'm sending more.
Rosemary

@rosemarya I thankfully had no avoidable complications from my cirrhosis, just those miserable but typical effects -- fatigue, low platelets, low iron, HE, but I sure wish when they they couldn't diagnose me for so long up here that I had gone to Boston then. I am confident they would have figured it out. I guess the outcome would not have been much different but going a year and a half not knowing was really frightening. The only thing they zeroed in on was the confusion-delirium and thought there was a brain problem, like some type of post migraine damage,seizures, and of course the PCP I had been going to before I dropped her, thought it was Alzheimer's. No one connected the dots until I ended up in the hospital and the hospitalist sent for an ammonia test.
JK

@contentandwell Your story is really a good one, JK. It helps to educate us all in continuing to look for answers even when they don't seem to be readily or easily available. Your symptoms were so varied that I can see how the real reason could have been overlooked or even misdiagnosed. I'm so happy for you that your story had a good ending.

If you could give one piece of advice to someone who is searching for answers, what would that be?

Teresa

@davidgenebarnes Prayers from Michigan as well! Teresa