Help us help you: What cancer topics would you like to learn about?

Dec 11 8:51am | Liz Waugh, Patient Educator | @lizwaugh | Comments (31)

The Stephen and Barbara Slaggie Family Cancer Education Center provides free educational resources and support for cancer patients and their families – including group classes, patient navigation, and online resources through Mayo Clinic Connect.

Throughout the year, we publish articles on a wide range of cancer-related topics. You’re reading one of them now! Our hope is that these articles provide support, inspire hope, and offer information that is truly meaningful as you navigate cancer or support a loved one.

No one understands what information is most helpful better than those living through the experience. That’s why we’re reaching out today.

We want to hear your ideas. 

What topics would you like us to cover in future articles? No suggestion is too big or too small. Our team will research up-to-date evidence and collaborate with Mayo Clinic experts to ensure the information we provide is accurate and useful. While we may not be able to write about every suggestion, your input helps guide our work and ensures we continue offering resources that matter to our community.

Feel free to browse previous articles for inspiration.

What can we write about that would help you on your journey? Please comment below. 

Interested in more newsfeed posts like this? Go to the Cancer Education blog.

How to talk to doctor about what kind of treatment is right.

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The effects of excess hormones. Do these effect our emotions?

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I recently had a precancerous place removed from my forehead. It was not a big place, but I wonder what this means for the future? The dermatologist has me coming in a year from now. I have been in the sun all of my life and I know that when I was a kid, sunscreen was not a big recommendation.

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Profile picture for haelsky @haelsky

Pulmonary Neuroendocrine
Cancer
Test to determine dx
Stages
Treatment
Prognosis

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@haelsky Thanks for the ideas. In the meantime, check out an article we previously posted which may have some useful information for you.
- Neuroendocrine Tumors: You’ve Got Questions https://connect.mayoclinic.org/blog/cancer-education-center/newsfeed-post/neuroendocrine-tumors-youve-got-questions/

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Profile picture for amygirl @amygirl

The effects of excess hormones. Do these effect our emotions?

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@amygirl Great idea. Thanks for sharing!!

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Profile picture for slmaples @slmaples

Low risk MDS including side effects of Aranesp for older women, longevity post diagnosis, natural strategies to enhance hemoglobin, foods to eat or avoid, etc.
Thanks for asking!

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@slmaples Thanks for sharing such a great idea!

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Profile picture for sveta25 @sveta25

I would like to see more articles about CLL treatments, when people start treatment, how long should Watch and wait approach be lasting, how to ask doctor to do more tests rather only relying on blood tests.?
What is prognosis for people with CLL?

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@sveta25 Thanks for sharing this idea. Looks like you aren't the only one looking for more information on this topic!

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Profile picture for sveta25 @sveta25

Thank you for asking.
I would like to see more informtion about CLL treatments, what kind there are and when it should be considered by doctors to start.

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@sveta25 Thanks for the idea!

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Profile picture for dj12 @dj12

How do I know if I'm getting the correct treatment?
I am stage 4 endometrial cancer and my main oncologist talks with her "team" to determine my care. But I don't know who the team is!
Lastly, they don't seem to hear me when I say I want to fight with everything I can. They just talk about palliative care and hospice. I am 67.

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@dj12 I’m really sorry you’re going through this. What you’re describing is something many people with advanced cancer experience, and it can feel incredibly discouraging when you don’t feel heard.
It’s reasonable to want to know who is involved in your care. Your oncologist’s “team” often includes other oncologists, surgeons, radiologists, pathologists, palliative care specialists, nurses, and other individuals, but you have every right to ask who they are and how decisions are being made.

It’s also important to know that palliative care does not mean giving up. It can be provided alongside active treatment and is meant to help with symptoms, side effects, and quality of life. We have a newsfeed article discussing this topic in more depth if you'd like to check it out. Understanding palliative care: Whole-person support for cancer patients | Mayo Clinic Connect: https://connect.mayoclinic.org/blog/cancer-education-center/newsfeed-post/palliative-care/

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Profile picture for Laurie, Volunteer Mentor @roch

Genetic testing for cancer.
When is genetic testing helpful for treatment plans or predicting your chances of getting cancer or your cancer returning? If tested over 5 years ago, should you be retested? Are there new genetic tests that were not around 5, 10, or 15 years ago? What are the most common genetic markers tested for?

Who and where should you get genetic testing? The role of genetic counseling with genetic testing. Are there fake or scam tests that people should be aware of?

Thank you

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@roch This is a great topic, and one that we have touched on before, but would be great for us to revisit. In the meantime, feel free to check out this previous article we have on genetic testing for cancer. Genetic Testing for Cancer: 9 Common Questions about Genetic Testing | Mayo Clinic Connect: https://connect.mayoclinic.org/blog/cancer-education-center/newsfeed-post/genetic-testing-for-cancer-nine-common-questions-about-genetic-testing/

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