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Recently diagnosed with MDS with anemia and would like to connect
Blood Cancers & Disorders | Last Active: Apr 22 9:28am | Replies (117)Comment receiving replies
@montauk ...23 days without a transfusion, my record. But, going tomorrow for 2 units, Blood count was 6.9. Oh well. It was great at 8.9. About a year now with no real success, but it is a year. Hopefully, something positive will happen soon. All I can say is 'stay strong', the same thing I tell myself every day.
Replies to "@montauk ...23 days without a transfusion, my record. But, going tomorrow for 2 units, Blood count..."
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@jeffreykassover1
I have been multiple times at 6.9 and gotten two units of blood.
Now they transfuse me at 7.4 to one unit of blood.
Living alone at 6.9 I was not sure I would wake up.
Also having to get a blood sample for antigen reaction the day before allowed a transfusion is a mental challenge.
I wish they could use the weekly blood test sample as the same sample as the antigen test.