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I was diagnosed with MDS in June this year when my Hg dropped into the 8s. My Dr put me on Vidaza and warned me that there was a good chance that the numbers would go down before they improved. That surely happened and my Hg dropped like a rock to 6.6 and over the next few months I received 4 transfusions for a total of 5 units of blood keeping my Hg between 7.4 and 8.2. Neutrophils also dropped to .2. After 4 cycles of Vidaza the doc and I both felt that the Vidaza wasn't working and he gave me a referral for a BMT. Amazingly, after the referral over the following 3 weeks, Hg shot up to 11.1 and Neutrophils to 1.2! Platelets have dropped to 60 tho. I have a consult for the BMT later this month to figure out what's next. Good luck!

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Replies to "I was diagnosed with MDS in June this year when my Hg dropped into the 8s...."

@johansenrj
Thank you for your response. That is great about your numbers increasing. Looks like the vidaza may workout. I just had my BMT consult this week and I'm trying to decide which way to go. Whether to start the chemo treatment or go straight to the BMT. Its a hard decision to make. I hope your numbers continue to rise and the vidaza keeps working for you.
And Merry Christmas to you and your family!!

@johansenrj, have you had your BMT consult? What's next?