Muscle tightness with squeezing sensation
I was treated with Keytruda for about 18 months after receiving high dosage radiation on my C2 over 3 sessions. My treatment started in April 2022 and stopped in September 2023.
Initially I lost about 20lbs in one week after stopping immunotherapy due to not feeling so good. My lungs became inflamed. I managed to rehab myself and though I was okay.
In early January 2024 whilst sitting in my chair my body started turning stiff in my left knee and then spread through both legs, my lumbar and up to my ribcage.
I was confined in the hospital 3 times during that January and could not walk without help for about 1 week. I was on fentinel drip, patches and steroids. I was then given a nerve related drug called Gabapentin but none of this helped with the pain.
i have been under a natural medicine doctor who helped me with nutrition and a high protein diet and I improved.
However the tight squeezing sensation has never left my body and the diagnosis by the hospital was transverse myletis.
As of today I do not take pain killer but choose to fight the squeezing pain. My bowel movement is still unpredictable and I undergo regular colonics.
I would like to know if you have other cases like this.
I am British but have been living in the Philippines since 1996 and was treated here in St Lukes Hospital BGC. However I do not go back because I almost died there after losing 50lbs.
My weight now is steady at 220lbs
Darryl Lewington.
Interested in more discussions like this? Go to the Brain & Nervous System Support Group.
Connect

Sorry, I forgot to mention that my original diagnosis was metastatic melanoma in my C2 which coukd not be operated on and that is why I underwent immunotherapy using keytruda in the first place.