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Recently diagnosed with MDS with anemia and would like to connect
Blood Cancers & Disorders | Last Active: Apr 22 9:28am | Replies (117)Comment receiving replies
@easrham
Same here. IO 585, 94%?saturation. They have given me phlebotomy’s to control IO that pushed my hg levels too low, then iron chelation medication “Jadenu” and that messes with kidneys and liver. Now, just controlling hg levels.
Replies to "@easrham Same here. IO 585, 94%?saturation. They have given me phlebotomy’s to control IO that pushed..."
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@shoch1957
It is difficult to find a treatment program that helps as one thing that helps in one area messes up another.
I must say I am new at this texting but it is helpful to speak to others who are going through the same or similar situations.