I have been having what doctors call palpitations every day

Posted by tommy0624 @tommy0624, Jan 26 4:35am

I have been having what doctors call heart palpitations every single day multiple times a day for the last 3 months now it seems like I can't do any thing without having them and I'm freaking out has anyone else had this issue?

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Profile picture for gloaming @gloaming

@kirbymaree Perfectly understandable to be in dread. I can only answer for me...I know me best. This guy, me, I hate operating from a position of no knowledge or poor understanding. I gotta know! So, despite having to read or watch videos explaining what all the bad stuff might be ahead, I have to begin chewing on possible alternative treatments or strategies. I can't do that honestly without knowing more than I understand at the moment, so I begin the laborious process, sometimes going down rabbit holes until the wee hours. Eventually, I can call it a day and fall asleep letting my mind mull over what I now understand.

I commend this orientation to your own health because it tends to be productive and it tends to keep you in the realm of power or potency. You get to question knowledgeably, not argue, but to ask why this and not that? If it must be this, you will at least have learned ahead of time that it might be the alternative your health provider wants to try first.

I developed atrial fibrillation (AF) near the tail end of a 10 km maintenance run. I lost steam suddenly, legs went heavy, and I began breathing much harder than I should have been. I sat on a curb, tried to let my heart calm, but I ended up in the local ER and soon learned I had a new diagnosis of paroxysmal AF. Paroxysmal means it comes and goes on its own, you don't need medical intervention, at least not in an ER. In your case, it might be AF, or it might just be PACs (premature atrial complexes, often a precursor to AF...you'll develop AF in time often, not certainly, but often you do go on to AF.

Whatever it is, shouldn't you know for your own sake? And wouldn't you like to know you have a specialist looking after you, who knows of you and your condition, and who offers you a way ahead....something to build optimism instead of dread?

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@gloaming I am going to the doctor this morning with regards to this , thank you so much

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Profile picture for kirbymaree @kirbymaree

@gloaming I am going to the doctor this morning with regards to this , thank you so much

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@kirbymaree Thank-you. And thank yourself. Get whatever it is known, and get a plan to bust it, or at least to put a leash on it. There's no looking back!! 😀

Oh, and we'd love to know what you learn. Good or bad, we're here to hold your hand.

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Profile picture for hopeseeker22 @hopeseeker22

@kirbymaree
Everyone who has this heart fluttering condition (I don’t make ‘ light’ of it, as I had it in my early 20’s, periodically, everyone must know at least a bit about general EXTRASYSTOLES.
Not a doctor, I think of them as rogue heartbeats. The “skip” is the beat AFTER the prior actual premature beat that expels less blood, necessitating the subsequent “beat” to pump out extra blood which is what one feels. But ask your physician; that was only how it basically was explained to me. So how does that help you? Yes. Your heart skips a beat and it’s scary!! Why? Because something going awry with it, we may associate with instant death! So we worry and likely make it worse. I’ve experienced a bad stomach cramp now and then, but never felt it might be a presage (harbinger) of impending death. And I too have been in the ER, monitored, oxygen, tachycardia.
Anyway, after I read about extrasystoles and had time to calmly consider what I’d read, it started my progress toward not fearing these errant beats. Still took time, Xanax and medical reassurance, but anything that helps, right? They gradually went away as my understanding of mind can really $&#% with those nerve transmitters. In hindsight, there were triggers: just married, brand new job, mother’s passing; eventual GAD diagnosis.

Consider Googling (w/o the quotes; and note WELL the spelling):

“cardiosecur.com extrasystoles”

If interested.
T
🛜

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@hopeseeker22 Thanks for your added information. What you describe and PACs are the same thing, and they often feel exactly as you describe. Everyone has PACs....everyone. But they are few and far between in a healthy heart. It is when they become intrusive, with that thickening feeling in the chest followed by a strong thump (the catchup beat when the ventricle is well full of blood and chucks that mass through the aorta) that they are both noticeable and annoying...or worrying.

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Hi everyone,so I went to the hospital today and they did thus ECG thing and according to that everything is fine but I'm still sitting with the same problem...any advice?

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Profile picture for kirbymaree @kirbymaree

Hi everyone,so I went to the hospital today and they did thus ECG thing and according to that everything is fine but I'm still sitting with the same problem...any advice?

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@kirbymaree If you went to the ER or acute care, they would normally only run a 15 second ECG which might show nothing. What you need, in my non-expert opinion (I have no medical training) is a monitor that you would wear for several days, say up to a week. A Holter monitor (that's the correct spelling) is bulky and annoying, although you do get used to it soon enough. You have six leads stuck to you, you wear a control unit on your waist, and you have to conscientiously record significant events through the day so they can see if something seems to set you off into PACs or AF reliably. There are some place dispensing ECG wireless cards that do much the same thing. The idea is to have a long enough sample that the probability of catching a run of the arrhythmia is high.

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Profile picture for gloaming @gloaming

@kirbymaree If you went to the ER or acute care, they would normally only run a 15 second ECG which might show nothing. What you need, in my non-expert opinion (I have no medical training) is a monitor that you would wear for several days, say up to a week. A Holter monitor (that's the correct spelling) is bulky and annoying, although you do get used to it soon enough. You have six leads stuck to you, you wear a control unit on your waist, and you have to conscientiously record significant events through the day so they can see if something seems to set you off into PACs or AF reliably. There are some place dispensing ECG wireless cards that do much the same thing. The idea is to have a long enough sample that the probability of catching a run of the arrhythmia is high.

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@gloaming I had a TIA in 2020, to make sure that I don't have afib my cardiologist implanted a loop recorder on my chest. It took 5 minutes, smaller than a paper clip. If there's any problem, Metronics, the company that makes the loop recorder will notify my doctor. My cardiologist's office also checked on it monthly. The battery lasts about 3 years? So far no issues. My doctor wants me to have the recorder removed , I just never got around to it due to various health issues but will probably get it done next year. This is really handy, no wires , no bulky stuff. I tried the Holder monitor, didn't like it, couldn't sleep with it. I have a Kardia if I want to check my EKG at home, handy little gadget, approved by my cardiologist.

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Profile picture for kirbymaree @kirbymaree

Hi everyone,so I went to the hospital today and they did thus ECG thing and according to that everything is fine but I'm still sitting with the same problem...any advice?

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Quit anything containing caffeine. Dont eat high sugar diet.

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Profile picture for gloaming @gloaming

@kirbymaree If you went to the ER or acute care, they would normally only run a 15 second ECG which might show nothing. What you need, in my non-expert opinion (I have no medical training) is a monitor that you would wear for several days, say up to a week. A Holter monitor (that's the correct spelling) is bulky and annoying, although you do get used to it soon enough. You have six leads stuck to you, you wear a control unit on your waist, and you have to conscientiously record significant events through the day so they can see if something seems to set you off into PACs or AF reliably. There are some place dispensing ECG wireless cards that do much the same thing. The idea is to have a long enough sample that the probability of catching a run of the arrhythmia is high.

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@gloaming My "Holter" monitor was tiny with zero wires, and nothing to wear but a small device on the chest. It paired with a phone. Very easy to use. I had a cardiac ablation for A-fib which the monitor shows no sign of now, BUT thousands of PACs and PVC's. Oiy

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Profile picture for judy3276 @judy3276

@gloaming My "Holter" monitor was tiny with zero wires, and nothing to wear but a small device on the chest. It paired with a phone. Very easy to use. I had a cardiac ablation for A-fib which the monitor shows no sign of now, BUT thousands of PACs and PVC's. Oiy

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@judy3276 I don't know what to say, Judy, except I'm sorry you seem to have swapped one arrhythmia for another. PACs in high numbers, especially within weeks to months after an ablation, is usually not a great sign. If the numbers are falling over time, that's probably a good sign, but when you say thousands, and if that adds up to about a 3% burden in 24 hrs, meaning 3% of all heart beats during that period, then usually an EP will want to check you out and offer to perform another ablation, except this time not treating AF.

Are you still in touch with the EP, or are you searching for another, or a second opinion? If you have some financial means, and don't mind a recommendation and travel/commercial lodgings for a three day period or so, I can suggest two crackerjack EPs, one in Texas, one in Cleveland. They're at the top of their fields and perform well on complex cases, which it looks like you may be.

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Profile picture for gloaming @gloaming

@judy3276 I don't know what to say, Judy, except I'm sorry you seem to have swapped one arrhythmia for another. PACs in high numbers, especially within weeks to months after an ablation, is usually not a great sign. If the numbers are falling over time, that's probably a good sign, but when you say thousands, and if that adds up to about a 3% burden in 24 hrs, meaning 3% of all heart beats during that period, then usually an EP will want to check you out and offer to perform another ablation, except this time not treating AF.

Are you still in touch with the EP, or are you searching for another, or a second opinion? If you have some financial means, and don't mind a recommendation and travel/commercial lodgings for a three day period or so, I can suggest two crackerjack EPs, one in Texas, one in Cleveland. They're at the top of their fields and perform well on complex cases, which it looks like you may be.

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@gloaming
Thank you, you are so sweet. I have an appointment with my EP on Monday to discuss what's next. It's always something......
Judy

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