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Moderator

Living with Neuropathy - Welcome to the group

Posted by Colleen Young, Connect Director @colleenyoung, Jul 14, 2017

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

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myhearthealth24 | @myhearthealth24 | Dec 4, 2025

Thank you for the greeting and I am grateful for all the information I am receiving from this group. I am 83 and have multiple health issues that I am dealing with. I have mitral and aortic valve stenosis, and was recently diagnosed with psoriatic arthritis and now neuropathy in my feet. My balance has been a problem over the past 3 years with several falls and my last injury resulted in a brain bleed. I am using a cane and find it very helpful. I remain as active as I can with friends and family. Please share any information concerning balance and I will continue to follow this support group.

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myhearthealth24 | @myhearthealth24 | Dec 6, 2025
In reply to @mfobrien36 "Don't laugh... I may have hit on something by accident that might help some of you...." + (show)
Profile picture for Mary @mfobrien36

Don't laugh... I may have hit on something by accident that might help some of you. Most nights I use a foot cream on my "neuro-pathetic" feet just to keep them soft. I have the type of neuropathy that causes me to feel everything; for example - I can't stand on the bathmat in my tub/shower as the little nubs really hurt. I get sharp, shooting pains in my toes and it wakes me up at night several times. I've tried gabapentin - didn't work at all! SO... the other night, I picked up my Ben Gay - by accident - rather than my foot cream and before I realized my mistake (how'd you miss the smell?) I had rubbed it on my foot and ankle. It felt kinda good... so I rubbed it on the other foot. I slept through the night. The first time in many a month. I thought this likely was a fluke, but decided last night to try it again... it worked again and today both feet feel some better. Usually, night time is when my feet bother me most so I was delighted. Don't know if it is a fluke or not, or if the Anti-neuropathy fairies have visited me while I sleep (I'm Irish so it could happen) but it seems like a cheap thing to try. I know it sounds goofy but if putting a bar of soap between your sheets wasn't considered too "strange" a suggestion - maybe this might work for somebody besides me. I doubt whether it would work on feet/ankles etc. that have open sores, though... that might really hurt.

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@mfobrien36
This is worth a try…thanks Kay

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spower | @spower112000liverpoo | Dec 6, 2025

I cured my neuropathy or controlled it by taking magnesium pills and tart cherry juice twice a day. If you are taking proton pump med for digestive issues your mag sulph is not absorbed and then you get neuropathy

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sron1904 | @sron1904 | Dec 19, 2025

Hi Everyone, I am very glad to have found this group. I was diagnosed with neuropathy when I started developing numbness in my hands and feet about 10 days after COVID J&J vaccine in 2021. And since then the neuropathy just comes and goes like a chronic condition. I am not even 40 years old and it is hard to explain to people about my neuropathy. I am looking into alternative treatment options for neuropathy and looking to hear if anyone had any good or bad experience with them. Thank you.

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Mentor
John, Volunteer Mentor | @johnbishop | Dec 19, 2025
In reply to @sron1904 "Hi Everyone, I am very glad to have found this group. I was diagnosed with neuropathy..." + (show)
Profile picture for sron1904 @sron1904

Hi Everyone, I am very glad to have found this group. I was diagnosed with neuropathy when I started developing numbness in my hands and feet about 10 days after COVID J&J vaccine in 2021. And since then the neuropathy just comes and goes like a chronic condition. I am not even 40 years old and it is hard to explain to people about my neuropathy. I am looking into alternative treatment options for neuropathy and looking to hear if anyone had any good or bad experience with them. Thank you.

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Hello @sron1904, I did a search of Connect using "neuropathy alternative treatments" and thought you might like to scan through the related discussions and comments to learn what others have shared helped them - https://connect.mayoclinic.org/search/discussions/

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