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DiscussionThis and That and Talk - My Transplant
Transplants | Last Active: Aug 14 9:57pm | Replies (1677)Comment receiving replies
Replies to "Hi all; prior to transplant, I was malnourished due to GI symptoms also. My hair fell..."
@chattykathy, I miss hearing your voice in these conversations. I do hope that you are doing well. Do you have any update about your nutrition and exercise possibilities?
I have been inspired to do some serious looking into my portion control, too. I'll share a 'trick' that is working for me! I have been filling half of my plate with salad before I set it on the table - the result is that I have less empty plate to fill with the goodies that I prepare for my husband.
Rosemary
@rosemarya :::::::::::::::::big sigh:::::::::::::::: I miss salads so much. I can't believe that I am told to not have them now due to my digestive problems from the immunosuppresants. I suspect I should not be eating fruits either and I love strawberries in the morning, either in my hot cereal or just sliced on my plate next to whatever I am eating.
JK
@contentandwell, I also have not eaten green leafies for a long time. I have no problems with strawberries, bananas, cantaloupe or oranges. I do, however, have a problem with watermelon unless I take an anti-diarrheal at the same time. I love watermelon, so I satiate and take the pill. Usually one watermelon satisfies me for a long time.
@contentandwell, No salads? Is this a forever thing, or is it temporary? Are there any veggies or fruits that are OK? Or are canned in natural juices OK?
Rosemary
@2011panc, @contentandwell
I am sending this link to Mayo Healthy Lifestyle Page. You might be able to find some nutrition information or recipes that might fit your needs. There are a lot of interesting topics, so I included the full page. Plus some special diets on the Fitness and Nutrition section.
http://www.mayoclinic.org/healthy-lifestyle
Rosemary
@rosemarya I hope it will not be forever, I love salads and they are so healthy. I've found some dressings that don't say "lite" but they really are lower in calories and some are very low in sodium, and they taste great. It's Braswells. I love their vidalia peppercorn. The only ingredient in it that is not something a person would not use at home is xanthan gum and I don't think that's bad for you.
I can eat cooked veggies because then the fiber is softened and less abrasive. Same with fruits. I love oatmeal in the morning with strawberries but the only hot cereal I see on the list is cream of wheat and I think my beloved strawberries and blueberries are off limits except in very small quantities. They said to not eat things that are more than 1 gm of fiber per serving. White bread is fine.
How crazy is this? It eliminates all the healthy eating foods.
Juices are fine but I rarely drink them because lots of cals and not much better for you than sodas really, plus I love grapefruit juice which is off limits due to the immunosuppressants of course.
JK
@rosemarya Thanks Rosemary. I took a look but "healthy living" diets are pretty much the opposite of what I am forced to be eating now to control these digestive problems. Today I dared not leave the house again.
JK
@contentandwell, I admire your attitude with all of this going on. But as we have agreed before, there is no good in complaining because it is what it is, and we are alive. I really hope that you get this straightened out before too long.
Previously you said these digestive problems are from the immunosuppressants. I have not experienced any similar symptoms, but I do know that many people have varying complications during 1st year. Maybe this is just one of those bumps in the road; soon to be a distant memory.
It will be interesting to find out if this will resolve with the dietary restrictions that you are implementing. Did your NP indicate anything about the time involved. I have also heard of some people who need to be changed to a different immunosuppressant meds.
Hugs,
Rosemary
@rosemarya Thanks for the support and encouragement. Prior to calling the transplant clinic I googled both prograf and cellcept and discovered that they both can cause my problem. Prior to that I was thinking I had just developed a sensitivity to something I was eating and my main suspect was salads!
I sure hope it is just a bump in the road and that once it is settled I will once again be able to eat a more healthy diet, including salads.
In the meantime, the weather is getting nice, although a bit cool this week, we are heading to Bar Harbor in Maine for the weekend with another couple, my son and daughter are both in good periods of their lives, and life is good.
JK
Because we are likely to get skin cancer because of all the meds we take .?!