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Rosemary, Volunteer Mentor (@rosemarya)

This and That and Talk - My Transplant

Transplants | Last Active: Feb 14 10:10am | Replies (1670)

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Are you a transplant patient or recipient? Have you had to deal with weight issues pre or post transplant?

Myself, I was wearing x-large sweat suits pre transplant due to ascites. And post transplant I could wear regular clothes in a small size. Now I have migrated back to my ‘normal’ medium size. For me it is a constant struggle to maintain that weight. I am a liver/kidney recipient, but I think that this issue relates to all of us. Sound familiar to anyone?
Please join and add your experiences.

@chattykathy, @contentandwell, @2011panc, have already shared some information on another forum. I extend the invitation to continue your conversation here on Transplant group.

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Replies to "Are you a transplant patient or recipient? Have you had to deal with weight issues pre..."

Hi @rosemarya. We have connected before. I need to lose weight to be in better health for my kidney transplant in a year or two. I was doing well for awhile (lost 20 lbs)but now I’m being a yo-yo. I really need to lose another 40 lbs but am struggling with my energy level (to exercise) because I’m in stage 4 and on very low protein. I also am dealing with plantar fasciitis which has meant no more walking the dog for quite awhile and that was my exercise before. I explored spending the money on Jenny Craig but they do not have low salt meals and I was ready to try Optifast with the local bariatric hospital program but you can only do that if in stage 1 or 2. Are there any programs at the Mayo Clinic or with the transplant team at Mayo? I’m open to any suggestions at this point. I know what to do, I just don’t seem to be able to follow through long term.

@lcamino, I am happy to visit with you again. Too bad about your plantar fasciitis – for you and for your dog. Are you getting anykind of treatment or management for it. It is painful. Fortunately my episodes have been minor and easily remedied with rest, change of walking shoes and inserts,

You are right to begin to prepare your body for future transplant.
I did Weight Watchers prior to transplant with a group of friends. But after my transplant I did not like it. I am a numbers person and the point counting was fun for me. To this day, I don’t know if it was the plan, or my failing liver that was responsible for my easy weight loss.

Mayo Clinic does have a diet plan 🙂 The Mayo Clinic Diet. It focuses building lifelong healthy eating practices as well as weight loss. There have been many fake diets in the past that have illegally used the Mayo name. But this is the real deal. I found it after my transplant thru an introductory book promotion from Mayo Marketing. I bought the book. I mainly use it for a balanced and healthy eating plan, now. And I really believe it is part of why I feel so good.

Here is some information for you.
Here are some menu and recipe ideas for specific dietary needs.
Keep in touch,

@rosemarya Give yourself credit, you did it, not your liver. I did it because I wanted my BMI to be lower and it was hard work because I had a good appetite right through it all. I sort of lost my appetite for a few weeks after transplant but definitely not before.
I am a numbers person also, but not a person who would do well in a group like weight watchers.

@lcamino My sister had terrible problems with plantar fasciitis but she went to a really good shoe store and got what she needed and it got better and has never recurred. A doctor told her what she needed to get.

@lcamino Weight issues are so difficult. I have had them a lot, yo-yoed all my life, but am hoping that this time I will keep it down.

I find that I am much more sluggish on days when I do not exercise and I have no energy on those days. If I get to my club in the morning and do my water exercises it improves everything. I struggle to go, who wants to get up, get into a bathing suit and into a pool that is a bit cold? After I go though I feel so glad that I did. I reward myself afterwards with a little time in the sauna. I do not do hot tubs even though my club is pretty pristine, because I fear UTIs.

When I started I always went to class a bit late because an hour was daunting. Now I try to be there on time and after class I jog/march/breast-stroke walk the pool for 45 – 60 minutes. After I am tired but feel good that I did it. My son loves hearing that I am exercising so on particularly good days I send him a screen shot of what my fitness tracker shows. Yesterday was my “personal best”, 30,000 points which according to the fitness tracker was equivalent to over 5 miles!

So try doing something, start out with just a little and gradually work your way up to more. If you have a pool available that is the best because of the low-impact — I have two bad knees so that’s important to me.

I was doing this right up until transplant, less in that last month and a half because I was struggling with not feeling well at all and was so swollen with edema and ascites that nothing fit me so I pretty much was confined to the house.

It sounds to me like most of us are concerned about weight issues. It is important to also be concerned about good nutrition, too.
I just came across this video and information about The Mayo Clinic and want to share it.

Sorry for my late response. Life has been busy. I see a podiatrist for my plantar fasciitis. I wear expensive sneakers all the time, have custom insoles and try to do my stretching 3x a day (I have missed the last week though – oops). I have had a medrol pack (burst of an oral steroid) and that worked wonders until it wore off. Tomorrow I think I’m getting a steroid injection. I do fine when I stay off my feet but once I am active it takes me a day or two to recover, but at least I’m recovering because that wasn’t happening before. Last week I flew to Rochester for my Mayo appointment and with the walking at Mayo and the Chicago airport I walked 10 miles that day! It felt great to be active but my feet really paid the price. I started walking my dog for a mile a day every other day for the past few days and it has been so nice to get outside and enjoy the nice weather. I’m supposed to exercise in a less demanding way so we will see what my podiatrist says tomorrow.

I’m back on the wagon for counting my calories and trying to build up my exercise. I use an app called My Plate to track food, water intake, and exercise. It has helped me learn that my weakness is what I drink. I’m in a study at the Mayo Clinic that makes me very thirsty so I drink about 150 oz a day (just over a gallon of liquid). I get tired of only drinking water so have a strawberry lemonade or juice and they are loaded with calories.

@icamino, thanks, I will check out myplate and see how it compares to myfitnesspal.
10 miles! Wooohooo, that’s great! I did five miles the other day and was exhausted. I don’t think I could do more than that. My pool walking really helps, diminishing the impact.

I see a podiatrist, have a really good shoe, custom inserts etc. These things were no longer sufficient once I started exercising so the doctor is helping me get through it. I need to rest the foot which means I can exercise but not by walking my dog. I can bike, swim etc. but I just haven’t gotten in the habit. It took me a long time to get that pattern and now I’m trying to change.Thanks for your input.

@contentandwell, I plan to check out mightinesspal too. Let me be clear, the 10 miles was NOT all at once! I walked 1 mile with my dog today and was dragging by the end. We both have to get back in shape. I’m going to ask my podiatrist about waling in the pool because I have thought of that but I’m not suppose to walk barefoot. Sometimes standing in the shower is too much and I have to wear my crocs.

@lcamino I, and most of the other people in the water aerobics, wear water shoes. If you plan to get any try to get ones that are not too enclosed. When I first started this, probably about six years ago, I had water shoes that were like Mary Janes (from Lands End). I found that because they were more enclosed they got really musty smelling. I have some now that I bought in The Walking Store, but you can buy them in many places for many prices. If I walk vigorously in the pool I sometimes slip if I don’t have the shoes on for traction. I don’t want to slip and fall in because I wear hearing aids — they can withstand a brief immersion and have but I hate to chance it. If your crocs have a back they would probably work for you too.