MCTD: My Life Is Ruined And Doctors Won't Help

Welcome @sporkwafflez, I am sorry to hear that the one medication that has helped with your pain consistently in the past is one that your doctors won't prescribe. If you don't mind sharing what the medication is there may be other members who have found alternatives or perhaps have found how to get the doctor to prescribe it. Can you share the name of the medication?

I'm so sorry that you are going through all this and with so much pain! How terrible for you! It sounds like you have tried everything but nothing works except the one they won't give you! I think the only thing you can do is take your troubles straight to God. He is there for us and he can heal you. After all he made you and he can fix you! I will pray for you also. You may have already tried praying about your situation with no results. Then, just pray again and maybe a little more forceful. There have been times in my life when I yelled at God before I got an answer finally, but it worked. He will answer your prayers too.
About the medication you need; is there any place you can get it without a doctor being involved? You might want to do some research on line about it. Pray about that too! If you could just buy it from a pharmacy or some company since you obviously know the medication and how it affects you.

I have an incontinence problem which is nothing compared to all that you are going through but one medication stopped the incontinence for 9 years! Now they won't give it anymore. So my bad incontinence is back full time and I have to deal with it. I can't visit anyone for fear of soiling their furniture even with all the pads I wear. I pray about it and it is slowly getting better. God has his own time frame and sometimes it doesn't work with what we'd like to see. I also had migraines and it took 2 years of my mom and me praying before they went away but they did go away.

Do try praying about your situation as I suggested. Or continue to pray if you have already been praying about it. God will be there for you. If you feel you need to talk, I'm here. My husband died from lung cancer in 2024 so I have a lot of time now.
Wishing you a Merry Christmas and sending you prayers and hugs,
PML

“I’m 100% sure doctors are doing this because they want me to off myself because it's an easier way to "deal" with me”

I am so sorry you feel this way. I hope you can find someone talk to about this. NHS hospitals have advocacy groups. Maybe Mayo does. .

Sparkwaffels, The pain distribution system among us really is unfair. I'm sorry you've encountered physicians who don't know what to do or are too afraid of regulations to give you adequate care. But I hope you don't give up. There are doctors who do a better job of helping. It's really a struggle and sometimes expensive to find them. If you give us your general location, one of us might know a doctor more able and more willing to help and not dismiss your pain. Bless yours struggle with the necessary luck.
A patient mentioned this doctor last week. Look at his ratings https://ratings.md/profile/matthew-sleziak

@johnbishop Percocet is the only thing that has ever touched my pain. I've never abused it, I have no history of addiction, I'm in my 40s, I've been prescribed it before and didn't abuse it then. That's how I know it works so well. I also know that some doctor wrote in my chart I'm an addict so it's flagged. It's not true. I have never been one but I think that because they see I can't take NSAIDs or Steroids they want an excuse to dismiss me and my pain so they can just claim I'm an addict and "drug seeking" instead of helping me. It's absolutely ridiculous that I am not allowed to take this medication because other people have abused it, because there's an opioid crisis that has nothing to do with pills doctors are prescribing. The pill mill paranoia they were all paranoid about stopped years ago. The vast majority of overdoses now are from street drugs not from prescriptions. This is so bad that when I had surgery last month, actual surgery, I was sent home with 500mgs of tylenol for pain and "aromatherapy". I was in agony for three days until I eventually went to the ER and begged them for help. I'm literally being punished for something I never did. And don't tell me I can get this removed from my chart I've been trying to get it removed for years. They always say they can't remove it they can just "Put a note" there that the doctor can choose to believe or not. I'm screwed.

@sporkwafflez There is another discussion where a member's mother could no longer get Percocet from her neurologist for neuropathy pain and it might help to scan through what other members shared to see if something might work for you.
-- Pain Pill Addiction and Neuropathy - Looking for Guidance: https://connect.mayoclinic.org/discussion/addiction-and-neuropthay-looking-for-guidance/

@johnbishop This is about being addicted I'm not so it's not really helpful

@sporkwafflez, many patients have found help at Mayo Clinic Pain Rehabilitation Center. You can learn about it from this blog:
- Chronic Pain & Symptoms Rehabilitation Blog https://connect.mayoclinic.org/blog/chronic-pain-symptoms-rehabilitation/

@gently referenced another discussion where a member followed a similar program at another hospital. While their situation is different from yours you can read that discussion here:
- Central Sensitization - Is it Medical or is it Mental? PAIN https://connect.mayoclinic.org/discussion/central-sensitization-is-it-medical-or-is-it-mental-pain/

You might also find some helpful suggestions in these discussions about Mixed Connective Tissue Disorder: https://connect.mayoclinic.org/group/autoimmune-diseases/

This is awful. You're not only in unaddressed physical pain, horrible pain apparently, with no relief
but
also mental pain.
What about just asking the sky -- or an angel only you can see-- or whatever
power greater than you (great than any one)--to please help you by reducing the pain or showing you how to relate to the pain.
Please know I am NOT making light of your awful situation.

So sorry this is happening to you. Sounds like you might have sadists for doctors.